Re: Statin-associated Muscle Problems
- From: jason@xxxxxxxxxx (Jason)
- Date: Sun, 19 Jun 2005 19:45:01 -0700
In article <Ztlte.1180$lv.1061@xxxxxxxxxxxxxxxxxxxxxxxxxx>, "Bill"
<xxx@xxxxx> wrote:
> "Jason" <jason@xxxxxxxxxx> wrote in message
> news:jason-1906050816530001@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
> > In article <2mate.6634$on5.3299@xxxxxxxxxxxxxxxxxxxxxxxxxx>, "Bill"
> > <xxx@xxxxx> wrote:
> >
> >> "Jason" <jason@xxxxxxxxxx> wrote in message
> >> news:jason-1806051906370001@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
> >> >
> >> >> So a 1 in a million chance according to this article, your muscle pains
> >> >> are
> >> >> gone, you have not told her about the red rice, and you have
> >> > discontinued the
> >> >> statin. I would not see a need for such a test if I were her either.
> >> >> However,
> >> >> you can pay for it yourself. Also, you must also balance the risk of
> >> >> statins
> >> >> with the risk of not taking them.
> >> >
> >> >
> >> > Hello,
> >> > Thanks for your concern.
> >>
> >> My concern is mostly about the way you are thinking about your problems.
> >> Not
> >> that you have an underlying problem itself.
> >>
> >> > Yes, most (but not all) of my muscle pains are
> >> > gone. I am not a math expert but I have concluded that I was taking what
> >> > is considered to be a very safe dose of statins. Provachol (Pravastatin)
> >> > comes from the factory in 4 dose levels. I was taking the 20 mg dose.
> >> > They
> >> > also make a 10mg dose, 40 mg dose and a 80 mg dose. According to page 42
> >> > of "What You Must Know About Statin Drugs..." by Jay S. Cohen, M.D., the
> >> > actual "Manufacturer's recommended dose" is the 40 mg dose or the 80 mg
> >> > dose. In other words, I am fairly certain that I was taking the
> >> > equivalent
> >> > of the 40 mg dose.
> >>
> >> How do you know that?
> >>
> >> >Therefore, it was a safe dose and should not have
> >> > caused me to have muscle pains. I have not yet given up on statin use.
> >> > Dr.
> >> > Cohen mentioned on pages 154 and 160 of his book that some doctors tell
> >> > their patients to use a pill splitter to cut [10 mg] pills in half.
> >> > Perhaps if I took a 5 mg dose of Provachol each day--that it would not
> >> > cause me to have muscle pain. What do you think about this idea? I should
> >> > note that my total chol. level (169 MG/DL) during my last blood test was
> >> > within normal limits. Dr. Cohen writes in his book that low doses of
> >> > statins are less likely to cause side effects than medium and high doses.
> >> >
> >> > You mentioned that you would NOT have arranged for me to have a CK test
> >> > if
> >> > I told you that I had statin-associated muscle pain (myopathy).
> >>
> >> That is not what I said at all. You said you had already stopped the statin
> >> and that your next appointment was a month away.You had said some time ago
> >> that your muscle pain was almost gone. With the statins stopped a while ago
> >> and things improving greatly it would not seem the test is needed.
> >
> > Bill,
> > You made some excellent points. I am sorry if I misunderstood you. That
> > was not my intention. I only started conducting research on statins about
> > three weeks ago. However, based upon what I learned it's obvious that
> > statins can cause problems to various organs and tissues such as the
> > kidney, liver and muscle tissues. Before I even consider taking low dose
> > statins I would like to know certain things such as a blood test for CK,
> > C-Reactive Protein and Liver Enzymes. Those tests would help me determine
> > if any long term damage was done. If not, I may resume statins at a low
> > dose level. My doctor does not feel some of these tests are necessary--she
> > just wants me to start taking statins again.
> > Jason
>
> I'm not sure, but I have a good guess that those tests would not be valid any
> longer since you stopped taking the statins a while ago? They are also
> unlikely to show what would happen if you started taking statins again since
> your symptoms have greatly subsided. And, again, how do you know your
dose of
> red yeast rice was acceptable? Also - as I pointed out before - if you really
> want these tests, you can pay for them.
>
> Bill
Bill,
You may be 100 percent right. I really don't know what to do at this point
in time. The tests that I mentioned might not help. On one day--I want to
try taking statins again but the following day--I don't because they might
do damage to my kidneys. What would you do if you were in my shoes?
Jason
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