Re: Mevacor - New FDA warning


"Robert" <Robertitsme@xxxxxxxxxxx> wrote in message
news:0_qdneAs_v2wvFrfRVn-vg@xxxxxxxxxx
>
> "Sharon Hope" <shope@xxxxxxxx> wrote in message
>
>> You are over-simplifying the CoQ10 'remedy' - it still takes years to
>> recover from statin adverse effects.
>
> You are over stating the whole premise of statins and CoQ which is why I
> hearded you into that statement.
> You continue to make exaggerated statements about PD being stopped in it's
> tracks and even being reversed. It suits you to exaggerate when it comes
> to
> that because it fits your theories that it is caused by statins and then
> when it doesn't suit you when it comes to muscle problems that can
> continue
> for MANY, MANY years after even after CoQ supplementation. In that case it
> doesn't suit you so you exaggerate in the other direction.
>

There is absolutely no exaggeration in my daily observation of my husband's
continuing disability, muscle wasting, chronic pain, exercise intolerance,
chronic fatigue, cognitive damage, aphasia, peripheral neuropathy, and
general debilitation.

We have the expert specialist consultation reports, the cognitive rehab
reports, the NP test results, the blood test results, the observations, and
much, much more. There are dates on these medical documents.

He is SEVEN YEARS AND SEVEN MONTHS from his first Lipitor 10 mg. and he is
having tremendous muscle problems, including today.

No exaggeration, just fact.



>
>>
>> For my husband, CoQ10 for 3 1/2 years has helped, but the recovery is not
>> complete - this from 4 years of Lipitor at 10mg.
>>
>> The general rule of thumb often offered is 1/5 times the duration on the
>> statin.
>>
>>
>> That means, in his case, IF FULL RECOVERY IS POSSIBLE, that TEN YEARS of
> his
>> life, starting in his early 50's were stolen by Lipitor.
>>
>>
>
> Your husband should be happy he is alive. There are discussion pertaining
> to
> stent vs graft and how long they last. I know, you don't really care about
> them.

He has had stents.

He is happy he is alive.

That does not make up, however, for the fact that he suffered PREVENTABLE
adverse effects from LIPITOR (atorvastatin) that caused him massive chronic
excruciating pain (yes, today, he is in the same pain), memory loss, muscle
wasting, aphasia, peripheral neuropathy, chronic fatigue, chronic exercise
intolerance, and massive gout when he expends more than 20 minutes of
physical activity (walking 15 feet from the bed to the bathroom is included
in that activity cap) and goes into massive muscle cell apoptosis (die off),
in response to which his body releases large amounts of uric acid, with all
its dangers and disorders, including gout, and which can lead to gall
bladder surgery, kidney failure, liver failure, and yes, rhabdomyolysis.

How happy do you think it makes him, or his daughters, or his 10 year old
grandchild, or me, when we have to run to him on the floor and pull on his
leg to realign the bones in his leg? High School football left him with a
bad knee, no ligaments and no cartilage, and he has managed ever since by
using muscle pressure to keep the femur atop the tibia and fibia bones.
Once the Lipitor muscle wasting started it became more and more difficult to
keep the leg under him.

What happy thing happens when the Lipitor damages the muscles in his leg?

His femur 'falls off' the balancing point, and shoots downward into the soft
tissue of his lower leg, while the tibia bone jams up into the soft tissue
of his thigh. Like a bad broken leg, the thigh bone is now rubbing against
and parallel to the shin bone. Yes, this increased pain does surpass the
massive chronic pain threshold he constantly lives with due to Lipitor
muscle damage, mitochondrial damage, and peripheral neuropathy.

In order to get up off the ground one of his happy family has to grab his
leg and pull until the bones retract from the muscles and get aligned
(picture old western movie setting a broken leg). Note that this is
PREVENTABLE LIPITOR DAMAGE.

Then he struggles to his feet to meet another day - happy to be alive, yes.

All of us are happy to have him alive, not one of us is happy or amused at
the PREVENTABLE LIPITOR damage he has suffered and the pain he is in every
minute of every day for OVER SEVEN YEARS.

Happy about having PREVENTABLE LIPITOR DAMAGE?

Happy for all the PREVENTABLE Lipitor disabilities in his 50's, what would
have been his peak earning years?

Happy for the PREVENTABLE Lipitor loss of his business?

Happy for the PREVENTABLE Lipitor loss of his ability to earn a living?

Happy for the PREVENTABLE Lipitor loss of his ability to pay for 2 kids in
college?

Happy for the PREVENTABLE Lipitor excitement of never knowing when the leg
will again fold up under him (and in any direction, by the way, with the
Lipitor muscle damage, the leg can bend backwards, or sideways at the knee,
o happy day)

Happy for the PREVENTABLE Lipitor aphasia?

Happy for the PREVENTABLE Lipitor memory loss to BELOW the 1 PERCENTILE?

Happy that he now has a PREVENTABLE Lipitor limit of 20 minutes of physical
activity per day?


What do you think?

> He should also be checked for other causes for his muscle problems.

He has been checked by many many diagnostic specialist experts in each of
the fields that cover his constellation of PREVENTABLE LIPITOR ADVERSE
EFFECT SYMPTOMS. Over 52 expert specialist (read head of department in
teaching university/hospital with multiple publications) consultations and
tests.

His POUNDS of medical records read like a who's who in medical science.

His diagnosis as PREVENTABLE LIPITOR ADVERSE EFFECTS is one of the best
documented differential diagnoses on the planet.

Your assumptions and suggestions to the contrary are accusatory,
presumptuous, perjorative, ignorant and WRONG.

>It may
> be autoimmune in nature which may or may not be related to statins.
> Maybe it was myositis that was unmasked by the statins. Unmasked means a
> subclinical case in compensation that becomes uncompensated or clinical
> after the drug. If you recall statins are contraindicated in patients with
> hypothyroidism. Patients with thyroid problems often have elevated CK
> levels unrelated to statins. A person with subclinical hypothyroidism
> masked can develop muscle problems related to statins as they are more
> vulnerable to muscle problems.
> Let me be the first here and not UCSD and say that maybe a TSH should be
> done and anyone with a TSH over 3.0 uu/ml.
> Should not be on statins. When are recommendations coming out from them.
> You
> won't see any.
>

He has had every test the many, many, many expert specialists he has seen
have asked to have run, and then some.

You said you were a clinician, not a doctor.

Why are you dispensing medical advice and second-guessing the top doctors in
each of their respective fields?

Is there no ethics policy at your hospital? Do you own the hospital? I
noted you can run lab tests at will on yourself and friends any time you
want, certainly you don't run them without paying for the facility and the
consumables, right?


> You have a one track mind and doctors must be aware of the entire
> differential diagnosis, both related to statins and unrelated to statins.
> Because of the scarce healthcare dollars and resources, doctors consider
> horses before zebras. They consider common diagnosis first and uncommon
> ones last.

In this case, the CONSTELLATION OF THE MOST COMMON KNOWN STATIN ADVERSE
EFFECTS, the HORSE is that constellation of symptoms, all occurring within
the LIPITOR treatment, and all known adverse effects of Lipitor.

In every single case, the doctor who chose to chase the zebras and unicorns,
hoping that the signature statin constellation of the most common statin
adverse effects were each individually explained by a myriad of unique
explanations, in every single case, those experts found that the unicorns
and zebras they were chasing simply did not exist.

The Horse in this case was the PREVENTABLE LIPITOR ADVERSE EFFECTS CAUSING
THE PREDICTABLE DAMAGE IN THE THREE MOST COMMON LIPITOR ADVERSE EFFECT
AREAS:

MUSCLE DAMAGE (including mitochondrial damage, cellular respiratory damage,
and ragged red fibres - and PAIN - all PREVENTABLE LIPITOR DAMAGE FROM
LIPITOR ADVERSE EFFECTS)

COGNITIVE DAMAGE (including short-term memory loss to below the 1
percentile - that means he could not remember the concept through a 7-word
sentence, nor remember what he ate for dinner the previous evening, aphasia,
cognitive damage, and multiple episodes of witnessed transient global
amnesia - all PREVENTABLE LIPITOR DAMAGE FROM LIPITOR ADVERSE EFFECTS)

PERIPHERAL NEUROPATHY (confirmed by multiple department-head neurology
teaching physicians in multiple tests and studies - all PREVENTABLE LIPITOR
DAMAGE FROM LIPITOR ADVERSE EFFECTS)

Of course, any logical doctor would look at the whole patient and identify
the LIPITOR as the cause of the constellation of the most common known
LIPITOR ADVERSE EFFECTS, but some chose to chase those zebras and unicorns
anyway - only to find they became LIPITOR ADVERSE EFFECTS. The horse in
front of their noses.

>People die because of this just as people in Canada die waiting
> in line for medical services.

Not in my home, not due to PREVENTABLE LIPITOR ADVERSE EFFECTS.

There is tragedy all around, some is preventable and some is not.

The tragety in my home is a twice corporate CEO hard-driving successful
athletic man who is now disabled due to PREVENTABLE LIPITOR DAMAGE FROM
LIPITOR ADVERSE EFFECTS.


> Hindsight is 20/20 and people don't have a note on their foreheads that
> state I will develop statin induced myopathy or I will develop
> rabdomyolysis. I saw another case of rabdomyolysis two days ago with a CK
> of
> 3100. It was caused by hypokalemia a known cause of rabdo. Since I began
> noting all the references to rabdo here I have seen about 5 cases and non
> were because of statins. It really is surprising considering there are so
> many people taking statins. Listening to you and others there is an
> epidemic
> out there of PD, rabdo and any other disease you can pin the tail on the
> donkey with.

We are not talking about hindsight. We are talking about drug companies,
the FDA, the NIH and the pharmacies and the primary physicians who CHOOSE
NOT TO WARN and CHOOSE NOT TO MONITOR and CHOOSE NOT TO TAKE ACTION when a
patient is faced with PREVENTABLE LIPITOR DAMAGE FROM LIPITOR ADVERSE
EFFECTS.

The risks are well documented, including even the unmasking of Parkinson's
Disease, Huntington's Disease and ALS (Lou Gherig's Disease).

The differential diagnosis on my husband is sound enough that his case is
part of at least two studies, appears in two books, and two magazine
articles.

Professional medical researchers and journalists are quite satisfied with
the results of the differential diagnosis.

Your opinion on its validity is not invited, not valued, not valid, not
informed, and singularly unimportant.

> You have again a one track mind that channels everything into a single
> idea.

Damn Skippy!

I submit that if you were spending more time in your own home, pulling the
bones apart to reset the leg of your spouse of 35+ years, you might have an
interest in that area as well.

Maybe you can watch your significant other endure PREVENTABLE LIPITOR
excruciating chronic pain, muscle wasting, cognitive damage, aphasia,
amnesia, peripheral neuropathy, chronic fatigue, exercise intolerance and
disability and blow it off - I can't.

Maybe you think there is no need to warn others that they should be aware of
such MOST COMMON PREVENTABLE STATIN ADVERSE EFFECTS so they don't need to go
through what I watch every day, but I do.

>
> Medicine doesn't work that way. There are consequences if you take or
> don't
> take statins and there are consequences if you take or don't take
> anything.
> There are consequence if you increase costs by testing for everything and
> if
> you don't perform any tests.
>
>

"You" in this case is the patient. Our medical structure does not have the
patient order the testing and does not have the patient define what the
doctors hear and the patient does not define what the label warnings will
cover and the patient does not define the risk assessment tradeoffs of
taking statins. The patients pay the doctors to do that and give what they
think is informed consent. However with the three most common PREVENTABLE
STATIN ADVERSE EFFECTS, the cognitive damage is not even disclosed in the
US.


.

Relevant Pages

  • Re: More statin adverse effects to become obvious?
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