Re: statins don't reduce dementia risk


"Jason" <jason@xxxxxxxxxx> wrote in message
news:jason-1707051055150001@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
> In article <f9adnV1HIsgZGkffRVn-jQ@xxxxxxxxxxx>, "Sharon Hope"
> <shope@xxxxxxxx> wrote:
>
>> "Bill" <xxx@xxxxx> wrote in message
>> news:jRmCe.4493$Ih7.1394@xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
>> >
>> > "Sharon Hope" <shope@xxxxxxxx> wrote in message
>> > news:9dCdnRDH4OuARETfRVn-oA@xxxxxxxxxxxxxx
>> >>
>> >> "Bill" <xxx@xxxxx> wrote in message
>> >> news:7MiCe.4230$Ih7.624@xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
>> >>>
>> >>> "Sharon Hope" <shope@xxxxxxxx> wrote in message
>> >>> news:bqednV4TI5FVO0TfRVn-iQ@xxxxxxxxxxxxxx
>> >>>>
>> >>>>>
>> >>>>> Out of interest, how would you characterisze the recovery today.
>> >>>>> 10%,
>> >>>>> 50%, 90%?
>> >>>>
>> >>>> Still waiting for test results....
>> >>>>
>> >>>> impatiently
>> >>>>
>> >>>
>> >>> I was just asking for your personal sense of how things have improved
>> >>> over time - in terms of dementia. Just a little. A lot. Somewhere in
>> >>> the
>> >>> middle.
>> >>>
>> >>
>> >> Somewhere in the middle, probably about 1/3 of the way back, I hope.
>> >> Definitely better than when on the Lipitor.
>> >>
>> >> The best way I know how to explain it is this:
>> >>
>> >> It was as if we had been walking along and at some point I realized he
>> >> wasn't next to me. Backtracking I realized he had fallen down an open
>> >> manhole and disappeared (Lipitor).
>> >>
>> >> I started working frantically to find out if he survived the fall and
>> >> running to experts for help in achieving a rescue, but it was months
>> >> (off
>> >> the Lipitor) before I could hear his voice echoing faintly in the
>> >> dark.
>> >>
>> >> Years before I could see the top of his head.
>> >>
>> >> Another year before he was able to climb out to the degree that his
>> >> head
>> >> showed above the sidewalk.
>> >>
>> >> Now, it seems as if he has climbed up to where his chest shows, but on
>> >> some days, too often, his foot seems to slip off the rung and he is up
>> >> only to his chin above the sidewalk.
>> >>
>> >> Three and a half years off the Lipitor, weekly cognitive
>> >> rehabilitation
>> >> therapy, CoQ10, specialist consultations, myriads of tests, and he is
>> >> probably only a third of the way out of that hole.
>> >>
>> >> Absolutely improved, what a blessing! But still far, far, far to go.
>> >>
>> >> Had it been Alzheimer's or Pick's or Tau protein or other
>> >> fronto-temporal
>> >> dementia, he would never have resurfaced at all, only gotten worse.
>> >> Had
>> >> it been a head injury, he may or may not have had a similar
>> >> progression
>> >> (there are inpatients with head injury - accident victims, police who
>> >> have survived gunshot wounds to the head, others who take the same
>> >> cognitive rehabilitation therapy there and they make progress.).
>> >>
>> >> But far, far, far to go.
>> >>
>> >>
>> >
>> > Thanks. Progress is progress and that is obviously a good thing. It
>> > also
>> > suggests that it is POSSIBLE that the underlying cause could be found
>> > and
>> > a treatment discovered.
>> >
>> > I have only a meager suggestion. You noted there are up and down days.
>> > If
>> > you could determine some cause and effect relationship e.g. diet,
>> > environment (inside, outside) that might help.
>> >
>>
>> Thanks, that is why I have kept a log for 3 1/2 years.
>>
>> As the scientists say, if it wasn't documented it didn't happen.
>> (roughly quoted from Clifford Stoll's "Cukoos Egg")
>
>
> Sharon,
> I might have missed it but how many months did it take before you noticed
> any signs of improvement in your husband's mental abilities?
> I have NOT noticed hardly any improvements in relation to my memory
> problems. Sarah told me yesterday that I left the storage shed unlocked.
> Last week, I left my car unlocked in a grocery store parking lot. I never
> done these sorts of things until the past several months. My problems do
> NOT seem to be improving.
> One other question: Have you seen any studies indicating that statins can
> cause the adrenal glands to NOT to work properly?
> Jason
>

The cognitive problems recover VERY SLOWLY.

Over 3 months off the Lipitor before the witnessed Transient Global Amnesia
episodes subsided.

Over 1 year off the Lipitor before the aphasia lessened to the point where
it was possible to complete one sentence in 4 or 5 attempts. Gradually
improved but nowhere near gone now 3 1/2 years off the Lipitor.

Over 2 years off the Lipitor before some of the memory loss lessened to
"severly impaired" - had been worse. (with weekly cognitive rehabilitation
therapy sessions and homework)

Now, 3 1/2 years off the Lipitor, some ability to handle 3-step processes,
but memory loss and other cognitive impairments persist.


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