Re: Underappreciated statin-induced myopathic weakness causes disability

In article <%hyMe.2104$r54.1594@xxxxxxxxxxxxxxxxxxxxxxxxxx>, "Bill"
<xxx@xxxxx> wrote:

> "Jason" <jason@xxxxxxxxxx> wrote in message
> news:jason-1608051724540001@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
> > In article <d7s4g11k0iq815qiqd5c55kckrsh910eo1@xxxxxxx>, Rita
> > <nitany_98@xxxxxxxxx> wrote:
> >
> >> On Tue, 16 Aug 2005 13:17:41 -0700, jason@xxxxxxxxxx (Jason) wrote:
> >>
> >> >In article <y4udne-2crWqpp_eRVn-1Q@xxxxxxxxxxx>, "Sharon Hope"
> >> ><shope@xxxxxxxx> wrote:
> >> >
> >> >> "Steve Marcus" <smarcus_spamout_@xxxxxxx> wrote in message
> >> >> news:Y9iMe.12096$Co1.5338@xxxxxxxxxxxxx
> >> >> >
> >> >> > "Sharon Hope" <shope@xxxxxxxx> wrote in message
> >> >> > news:CYednRN_aIK01pzeRVn-vA@xxxxxxxxxxxxxx
> >> >> >> Apologies should be directed to the statin disabled.
> >> >> >>
> >> >> >> Your second sentence in your initial conclusion was offensive to
> >> >> >> anyone
> >> >> >> who has had their loved one disabled needlessly.
> >> >> >
> >> >> > Virtually everything that *you* write on the topic of statins is
> > offensive
> >> >> > to people who understand anything about drug research and peer
> >> >> > reviewed
> >> >> > studies. More importantly, virtually everything that *you* write
> > is both
> >> >> > offensive and dangerous to people who are being aided, or could
> >> >> > potentially be aided, by statin therapy.
> >> >> >
> >> >> > Your loved one was disabled needlessly due to an unusual adverse
> > reaction
> >> >> > to a prescription drug combined with what may well have been an
> >> >> > insensitivity to that reaction on the part of his physician(s).
> >> >> > Adverse
> >> >> > reactions to common beneficial drugs such as aspirin and penicillin
> >> >> > have
> >> >> > killed people before, and will continue to do so. It's called "bad
> > luck."
> >> >> > Your reaction to your loved one's bad luck is to mount a campaign of
> >> >> > propaganda and disinformation against statin drugs akin to the
> > opposition
> >> >> > to fluoridation of water; the chief difference being that bad teeth
> >> >> > have
> >> >> > the potential for killing far fewer people than coronary artery
> >> >> > disease.
> >> >> >
> >> >>
> >> >> This is simply not true.
> >> >>
> >> >> The adverse effects from the Lipitor began almost immediately, and were
> >> >> reported to his doctor immediately.
> >> >>
> >> >> The doctor, lacking full disclosure of statin adverse effects and their
> >> >> dangers ( this was prior to the Baycol voluntary recall), told his
> >> >> patient
> >> >> repeatedly to ignore the adverse effects and keep taking the statin or
> >> >> he
> >> >> would die from a heart attack.
> >> >>
> >> >> Pain? Keep taking Lipitor or you will die. Neuropathy? Tough it
> > out, keep
> >> >> taking Lipitor or you will die. Memory loss? Haven't heard of it in
> >> >> relation to Lipitor, if it Alzheimer's there is no cure anyway, so
> >> >> FORGET
> >> >> IT, and keep taking Lipitor or you will die. CK over 10x normal at the
> >> >> threshold of rhabdomyolysis, ignore the pain and keep taking Lipitor
> > or you
> >> >> will die. (no recognition that rhabdo can also make you die) Uh-oh, a
> >> >> specialist says the Lipitor may kill him? His memory now scores
> > below the 1
> >> >> percentile, this in a Corporate CEO? We have nothing to discuss,
> > just hide
> >> >> the Lipitor pills from him.
> >> >>
> >> >> Every month the degree of intensity and the number of adverse effects
> > grew.
> >> >> Every single month for 48 months. At the end of that time he was fully
> >> >> disabled, physically and cognitively.
> >> >>
> >> >> Because of the lack of disclosure about adverse effects at that time,
> >> >> the
> >> >> damage continued to grow.
> >> >>
> >> >> This was not just bad luck, this was a direct result, not just of the
> > drug's
> >> >> myotoxic, neurotoxic and brain-damaging propensities, but a direct
> > result of
> >> >> a lack of available honest information on statin adverse effects.
> >> >>
> >> >> This persists, as many of the statin trials simply withold information
> >> >> on
> >> >> adverse effects, others document known and acknowledged PI-listed
> >> >> adverse
> >> >> effects in the "unrelated" category.
> >> >>
> >> >> My posts center on the awareness of adverse effects.
> >> >>
> >> >> The motivation is obvious.
> >> >>
> >> >> If they offend you, don't read them.
> >> >
> >> >Sharon,
> >> >Great post. Keep up the great work in regard to warning people about the
> >> >adverse effects of statins. You may have saved me from developing the same
> >> >types of problems that your husband is having. Only time will tell whether
> >> >or not I develop more serious problems. Your posts and your FAQ helped me
> >> >to determine that statins were the source of my muscle problems and memory
> >> >problems.
> >> >Jason
> >>
> >> I see you have decided not to seek medical advice on your problems.
> >> I think you are taking a big chance to diagnose yourself based on
> >> what you read in a newsgroup. There could be other reasons and perhaps
> >> you could be helped. But you will never know if you don't bother to
> >> see doctors about the problems.
> >>
> >> It is interesting and informative to discuss medical problems with
> >> lay people, but only proper medical examination, tests, and so forth
> >> can give answers.
> >>
> >> I suspected statins might be at the root of my recent medical problems,
> >> but I did see doctors and learned otherwise. And now have some hope of
> >> remedying the situation and have experienced a fair amount of relief
> >> in a short period of time. How happy I am I didn't assume statins were
> >> the cause of my problem.
> >
> > Rita,
> > Great news. I finally have a new doctor. I lost trust in my last doctor.
> > My new doctor is a board certified internist. I am hoping that he will
> > arrange for me to get the blood tests and urine tests needed to determine
> > whether or not I have kidney or liver problems. I do read newsgroup posts
> > but I have also read a book related to the liver and another book related
> > to the kidneys. Both books were written by medical doctors that are
> > specialists in their fields. I have learned a lot from those books.
> > Jason
> >
>
> Did your other Dr. not do liver function tests?
>
> Tell us the results either way. Good luck.
>
> Bill

Bill,
Thanks for the encouragement and support. I had to beg my doctor to do a
CK test. She finally agreed to arrange for the test. The number was 94
(reference was 38--174). She refused to arrange for several other blood
tests that I requested. I'm hoping that my new doctor will arrange for the
tests that I need in order to determine if I am having any liver or kidney
problems. I'll post the results of those tests.
Jason

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