Re: Strange Illness For Over One Year, Please Help!


<ryancinman@xxxxxxx> wrote in message
news:1128325068.604895.28580@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
> Hi all,
>
> My name is Bill. Starting Sept. 8 of 2004, I have come down with a
> "mystery illness", at least according to eight doctors thus far. I am
> hoping to find some possible causes for the problems I am experiencing.
>
> Symptoms onset suddenly at 6:00 PM back on Sept 8/04 for no obvious
> reason. Prior to this, I had no known health problems.
>
> Originally, It started out as numbness of the left side of my body,
> affecting the face, arm, and leg. Soon, the numbness spread to my
> entire body and my hands literally clenched up. I could not move my
> mouth, hands, or legs, they were totally numb.

Are they induced by increaase temperature as in MS?
What if anything can induce the attacks?
Exercise? High carbohydrate or salt intake?
You might want to look into periodic paralyses.
"The most common muscle groups affected are the arms and legs; however, the
disorder may also affect the swallowing and respiratory muscles, which in
severe cases, can be fatal."
http://www.clevelandclinic.org/health/health-info/docs/2400/2452.asp?index=9499

>
> To follow was shortness of breath and rapid heart rate. Once placed on
> ambulance monitors, 02 was 82%, BP 220/120, HR 180 BPM. During this
> time, I was fully alert, totally aware of what was happening. I felt
> like I was going to die.
>
> The hospital diagnosed lead poisoning (I work with solder frequently).
> They gave me Albuterol and sent me home. Later that night, the symptoms
> came back, but I stuck it out.
>
> Three days later, while visiting my family doctor, the same chain of
> events occured again that led me to the hospital originally. He
> immediately called 911 and I was again taken to the hospital via
> ambulance. There was no explaination.
>
> I remained home for months following this incident, dizzy, short of
> breath, and not able to function. Gradually, things got somewhat
> better.
>
> In Nov of 2004, I saw a Cardiologist. A new murmur was detected which I
> did not have before. I passed the stress test and echo, no problem.
> Blood tests and gases were normal. I was placed on Atenolol 50 mg for
> the tachycardia.
>
> Around this time, more symptoms developed. Unexplainable red lesions
> covered both forearms, I lost part of the vision in my left eye, and
> the murmur got louder.

I don't know what you mean by "lesions" and it would be helpful as to what
the doctors called it.
Where they bruises or urticarial looking?
http://www.drkoop.com/ency/93/003232.html
>
> I also saw a Pulmonary doctor, Rheumatologist, Infectious Disease
> doctor, Endocrinologist, and Neurologist. Not much was found except for
> the following:
>
> ANA = 3.3 (marked as elevated)

No normal level stated. Was the nature or type of ANA investigated? Anti-Sm?
Anti-DsDNA? Florescent pattern?
Anti-Rnp?
> Cortisol PM = 18.6 (12.0 is the maximum normal)

Stress induced cortisolism.

> WBC = 3.8 (4.0 minimum normal)

Not really helpful as it is borderline. Differential was normal?

>
> In my opinion, the problem is cardiac related.
>
> To date, the symptoms are: Severe shortness of breath at rest,
> tachycardia, red skin lesions (small, BB size), vision loss in left
> eye, occassional dizziness, photophobia, severe fatigue, 50 lbs weight
> loss.


>
> I am starting to regain some of my life back at age 22, but the
> symptoms still take their toll.
>
> Any ideas would be much appreciated.
>
> Best,
>
> Bill
>

Not sure if all symptoms are related or not.


.

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