chronic parcarditis.. Whats the future hold?



Hello all...

in a nutshell ive been diagnosed with chronic parcarditis.. I forget
the technical term my doc gave but basically my own immune system is
attacking my pericardium.

Ive just got some basic questions..
ok, maybe not that basic but still questions ;)

They have me on Prednisone starting at 60mg a day. I tried to ween
myself off of them but when i got down to about 10mg my chest felt
brusied so they put me back up to 60. Im on 40mg a day now as well as a
dose of colchicine.

They are trying to ween me off again. I dont think its going to work
though as i still feel as though my chest is bruised so im figuring
when i get down to 20mg or so of Prednisone the paricarditis will
return.. then what? And thats where my questions come in.

With someone with my afflication.. does there sometimes come a day when
the immune system just stops attacking? Even for a little while?

Is there other meds other the Prednisone that i can ask my doctor
about? This stuff is horrible.

I think my doctor has been pretty thourough looking for the cause, as
well as other doctors, with no luck. Has anyone had what i had and
actually found the cause?

Anyhow.. any answers to those questions and ANY info you can give me
regarding this in general would be much appreciated.

I have read other posts and have learned alot but you never know what
people havnet posted and thats why im asking these questions today.


Thanks for your time.

.



Relevant Pages

  • Re: chronic parcarditis.. Whats the future hold?
    ... the technical term my doc gave but basically my own immune system is ... They have me on Prednisone starting at 60mg a day. ... the immune system just stops attacking? ... I think my doctor has been pretty thourough looking for the cause, ...
    (sci.med.cardiology)
  • Re: Michelles Thoughts on The Christmas Invasion (Spoilers)
    ... Its like having the Doctor meeting Charles Darwin in a London ... >> 5) A World Peace Conference attacked by Daleks and Ogrons ... >> 6) Sea Devils attacking oil rigs, sea forts and Her Majesty's Navy? ... RTD has lost the plot. ...
    (rec.arts.drwho)
  • Re: Uh-Oh! Think I need some opinions here! And the verdict is.....
    ... it's a legitimate alternative to the immune system ... suppression that is now seen as legitimate protocol. ... The doctor that started this is in New York, ... prescribing it for over 20 years. ...
    (alt.support.arthritis)
  • Re: Michelles Thoughts on The Christmas Invasion (Spoilers)
    ... Its like having the Doctor meeting Charles Darwin in a London where ... London evacuated. ... A World Peace Conference attacked by Daleks and Ogrons ... Sea Devils attacking oil rigs, sea forts and Her Majesty's Navy? ...
    (rec.arts.drwho)
  • Re: Plea for help with diagnosis
    ... >> My guess is that it is something involving the immune system ... Do you feel lucky ... experiment with it to see if it helped alleviate symptoms. ... It would be wonderful to find a doctor with the time to actually think ...
    (sci.med)