Re: Experimental Treatment for Liver Cancer (inoperable)?
From: Thomas T. Veldhouse (veldy71_at_yahoo.com)
Date: 06/18/04
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Date: 18 Jun 2004 12:47:07 GMT
J <unnewbie55@privacy.net> wrote:
>
> Hi Thomas, I think there's a lot of missing information.
> Age, date of surgery, did they sample, remove or view the "affected" lymph
> nodes.
Age 56. He had his original surgery in December of 2002 (diagnosed in
July 2002 ... 6+ weeks before any treatment, then chemo/radiation, 30
days healing and then surgery).
There is currently no plan to do any surgery as he is not in any pain
(the Doctor found this amazing). The lymph nodes have not been removed,
but they are VERY near the original site of cancer (rectum) in his
pelvis. The tumor in his liver is apparently in the center and deep,
near the artery. I have not been told in particular why they consider
it inoperable, so perhaps there is some other liver damage I am not
aware of but can only guess at. He has bleeding ulcers in his stomach
and esophagus (benign) that are causing him to become anemic, and that
my be one of the reasons they have chosen not to operate (so far). I
suspect also, that the cancer is far along (there is now a lump on his
upper right abdomen) from the tumor in his liver.
> If remove, when?
> Size of tumour? Near or on an artery or blood vessel of some type?
> Other known health issues,
> did he have chemo ? I
> f so, which? W
> hat was his Karnofsky performance during treatment.
> How is he now? Is he symptomatic?
> Date of initial diagnosis vs date of metastasis..probably more, but I forget
> now.
I answered some of this above. Other health issues, he has typical
vices.
I am not sure what Karnofsky performance is, but they believed he had
better than a 90% chance at complete recovery.
>
> I did look at chemoembolism and weighed that against another (probably)
> younger man who started treatnents July/03, had 3 month hospitalization
> earlier this year, has only achieved reduction of half the size of the
> tumour
> and here we are in June and his "wound" has still not healed. Not to
> mention that it's a different type of liver tumour and no lymph nodes
> involved.
>
> I could be wrong, but if an oncologist has suggested there is nothing more
> to be done, than I would think it's unlikely you'll find anything that would
> buy him more than a few months more and may be risky to end his life
> earlier.
His goal is quality of life rather than length at this point. However,
he has resisted amazing issues in his life (a survivor of malignant
hyperthermia @ 109.5F temp ... no kidding). I just want to know what
there is to know, I don't honestly believe I will find anything that
will help, but I don't want that to be because I didn't look. Even if I
can't find something to aid him, I might be able to get involved
somewhere to help others with cancer, and further, such help may
reward me someday (Grandfather and his siblings, Grandmother and now my
Father have all had cancer).
>
> I'm not sure where the doctors are, so try to fill in the blanks and
> hopefully one will be by soon to reply.
>
> J - not an expert
>
-- Thomas T. Veldhouse Key Fingerprint: 2DB9 813F F510 82C2 E1AE 34D0 D69D 1EDC D5EC AED1
- Next message: CMS Outreach: "Information on Medicare-Approved Drug Discount Cards"
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