Re: Experimental Treatment for Liver Cancer (inoperable)?]

From: J (goesbyastime_at_example.net)
Date: 06/27/04


Date: Sun, 27 Jun 2004 02:18:59 -0400


"Thomas T. Veldhouse" wrote:

> Newsgroups are for whomever want to go there. I was politely asking
> that they take the off topic conversation to another thread or offline
> would be even better. So, was that wrong?

Not really. However, thread drift occurs. Flames occur and the way I see it,
Orac's comments provide clarification as to who is who for the casual lurker or
new readers.

> I like the content of this group and don't want to filter anybody (it is
> a pain to maintain filters anyway, as true trolls morph their names on a
> post by post basis). Filtering is really only effective [in theory]
> against trolls and spam.
>
> Actually, he does want me involved, it is just that he is happiest
> seeing the doctor himself [with my mother].

Thank you for clarifying.

> As it turns out, he isn't
> just taking Avastin, and he isn't just taking IFL, he is taking Avastin
> with just on other drug [that I am aware of]. 5-* something or other.
> I don't have the name handy. He had that drug during the first round.

The "Salz regimen," also known as IFL, includes irinotecan, 5-fluorouracil (5-FU),
and leucovorin.
So he's probably getting http://tinyurl.com/2hxpb
plus Avastin http://www.sciencedaily.com/releases/2004/02/040227071334.htm
http://www.cancer.gov/clinicaltrials/results/bevacizumab-and-colorectal-cancer0601

(I hope you've been reading the links that I've provided)

> For this reason, I have to wonder about its effectiveness. They may be
> worried about limitting his anemia.

Some or most do have that as a "possible side effect". Some have to take breaks
and/or that may be dose-dependant.

> Actually, I suspect his conversation would not be so naive (his father
> died of cancer and serveral of his uncles/aunts). However, he may have
> asked about experimental treatments.

Well, that's good, if he has. That would mean you've both explored every possible
option.

> Perhaps. He is beginning to feel pain now, as he seems to dread any
> cough that he might have. He was eating well on Father's Day, but
> today, in spite of feeling pretty well, he was only able to eat about 3
> ounces of a steak and maybe a bite of vegatables. He felt nauseas after
> that. Stint on Monday, Chemo starts on Tuesday.

Timely ! Hopefully that will help to reduce his pain.
We have to keep the goals in sight http://tinyurl.com/vh34 which is presumably
shrinking the tumor, less pain, hopefully more appetite, hopefully few side
effects, "buying" quality time...

I'll watch for your updates.
Keep in touch, Thomas,
J



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