Re: glial tumor
From: madiba (down_at_thekraal.com)
Date: 12/11/04
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Date: Sat, 11 Dec 2004 13:35:40 +0100
J <me8004@privacy.net> wrote:
> Evelyn wrote:
>
> > I´m writing from Poland. my friend (she is 23 years old) is very sick.
> > she has glial tumor. she had a biopsy after which she stop seeing. the
> > tumor is big 3cm on 4 cm on 1.5 cm. we have in poland hospital that
> > use Gamma Knife technique but the doctors said that the tumor is to
> > big. it can not be operated.
> > it is 4 stage tumor.
> > can anybody help me, give me an address of hospital she could go.
> > she is very young. in Poland nobody can help her. maybe there is a
> > hospital she can go.
> > i would be very grateful
> > regards
> > evelyn
>
> Hello evelyn, I'm sorry to hear about your friend.
> It sounds like Poland has very good technology.
You mean NOT such great technology or neurosurgeons with two left
thumbs.. She went blind from the biopsy, probably means she bled
profusely into region around the optic chiasma.
> Since just doing the biopsy caused her to lose her sight, they must be
> correct that the tumour is inoperable.
> More damage would be done.
Not necessarily. Could be a bleed from the biopsy.
> What type of glial tumor is it?
> I'm not an expert but it looks like (here) - # 1, there's
> subclassifications.
> http://neurosurgery.mgh.harvard.edu/newwhobt.htm
>
> Steph may be around in a bit and he might appreciate further information.
>
> If her vision was disturbed, it looks like the tumour is at least,
> affecting her temporal lobe
Unlikely, she would otherwise have retained part of her visual field.
Its not where she was biopsied.
> http://news.bbc.co.uk/2/hi/health/medical_notes/363368.stm There's a
> diagram there of which parts of the brain control what areas of the body.
> Her brain stem may even be affected.
> Has a second opinion been requested by another neurosurgeon in her
> country?
She's lucky she found any, second opinions are uncommon in Poland..
> Has a radiation oncologist been consulted?
A relevant point, in some countries Gamma knives are run by
neurosurgeons.. These machines have been adapted (some would say
misused) to treat tumors larger than the standard 1-2cm by doing a rad
series with the isocentres close together.
Stereotactic radiation AKA radiosurgery with LINACs is one option, OP
and conv. RT with/w.out Temodal the other.
-- madiba
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