Re: Steph, can you talk to me?

augustwestern wrote:

> Stryped complains of no symptoms of lupus other than the mild fevers.

you would have to read every one of his posts, on every newsgroup that he posted
to.
Fatigue, swollen fingers, pain, low grade fevers, Recurring flu-like symptoms
and/or night sweats
(many of these fit the symptoms that Lupus patients mention)

> Lupus
> in young men is relatively rare and follows a definite set of symptoms and
> lab results.

Perhaps it's such rigid thinking that caused the death of my co-worker.
And the late diagnosis of a male friend of mine - only after his kidneys were in
trouble.(late 30's)
He'd been feeling ill for almost 10 years before that. So yes, some get Lupus at
younger ages.

> You can be sure if he had a C reactive protein test done that
> they also did a SED rate and ANA on him

I ran a search on both his email accounts of all posts over the past two years
and SED and ANA did not show up.
He has posted bloodwork results on sci.med and the thyroid newsgroup.

> at which point his original Dr would

original doctor? Apparently he's had many or at least several.

> have decided whether or not he needed to see a rheumatologist. A self
> referred appt to a rheumatologist at this point in time is another big waste
> of money. Ask Steph.

I did not suggest it first. It was suggested by a Lupus patient on
sci.med.immunology.
That's when I decided to get involved for 2 reasons.
It was suggested on the fibro newsgroup that he both see an oncologist and a
rheumatologist.
On alt.med.allergy, they've suggested TB or malaria and a long list of other
ailments; including taking long-term antibiotic treatments.
On sci.med, several if not more, are suggesting repeat or more/other scans.
In my view, a rheumatologist, is the most likely one to clear him of Lupus and
likely not order more scans (especially if he takes all his tests/scan results
with him) and a little bloodwork (in the face of what is being suggested by all
the others, on all the other newsgroups), is minor and rheumatologists usually
are pretty good at telling people if they think it's "all in your head". They
can suggest a followup with them in a year or so. They can suggest a
psychiatrist, if they feel it's warranted. Apparently none of his doctors have.
They may redo all his bloodwork, along with screening for Lupus and other things
and hopefully explain the results to him. At least, I will know that it is not
Lupus (if it's not)
However, he probably won't go because he's needle-phobic.
When people stop responding, he changes his screen name and email address and
starts all over again.
And so, these posts, on various newsgroups, will contrinue on into infinity,
unless he's finally convinced that's he's had all the scans and all the
bloodwork, that would rule most problems out.

J

.

Relevant Pages

  • Re: Steph, can you talk to me?
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  • Re: Steph, can you talk to me?
    ... > Stryped complains of no symptoms of lupus other than the mild fevers. ... I checked and the SED rate isn't always elevated In Lupus. ... It's the ANA and some of the other bloodwork that rules in or out. ...
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