Re: no node NPC


"Steph" <steph@xxxxxxxxxxxxxxxxx> wrote in message
news:xEMVe.485220$s54.438084@xxxxxxxxxxx
>
> "fred" <redfvh1red@xxxxxxxxxxx> wrote in message
> news:xQHVe.565$5n4.560@xxxxxxxxxxxxxxxxxxxxxxxxxxxxx
>> I'm a 57yr old retired firefighter living in the San Francisco Bay area.
>> I've been diagnosed with stage 2b NPC. There is no node involvement and
>> no symptoms other than partially blocked nasal passages. I am being
>> treated at Stanford's Cancer clinic. I'm scheduled for mask fitting and
>> radiological and chemo treatment in the near future. There seems to be
>> some questions in regards to my treatment because of the fact that no
>> nodes are involved. The questions are whether to radiate the neck, six
>> or eight rounds of chemo, and whether to use the cyber knife towards the
>> end of treatment. I would be very interested in hearing from anyone who
>> is or was in a similar situation. After talking to the ent and
>> radiological doctors I felt confident that if I went thru 6 weeks of
>> radiation (5days a week) with 3 sessions of chemo.. I would have very
>> good chance of recovery. But boy after talking to the Oncologist
>> yesterday I'm not near as confident. I get the feeling that because
>> there's no node involvement.. he thinks that there is something else
>> going on. Even though the PET, chest x-ray, blood work is ok,,, except
>> for the 3cm glowing mass behind my nose. Anyone have an ideas.
>>
>>
>>
>>
>>
>> Regards
>>
>> Fred
>>
>
> Our policy here in BC is generally to treat node-negative NPC with
> radiation only and use chemo-radiotherapy for patients with neck nodes.
> The only treatment which has been shown to cure NPC is radiotherapy - the
> chemotherapy adds some benefit in appropriate patients.
>
> Having said that, Stanford is an excellent centre.
>
> My advice is to get an oncologist (preferably radiation oncologist) you
> trust and take his/her advice.........

Thanks Steph... Can you tell me why it makes my oncologist is suspicious
that I do not have nodal involvement? He seems to feel that there is more
going that the tests do not show...thus the the full regime of chemo. This
guy is suppose to be one of the best in the business. I should probably
leave the details to the smart folks and focus on the upcoming battle.

thanks again

Fred
>
>


.

Quantcast