Re: Diary of a Tumor
- From: down@xxxxxxxxxxxx (madiba)
- Date: Fri, 28 Oct 2005 16:16:04 +0200
Araik Margarian <aramargar1@xxxxxxx> wrote:
> "madiba" <down@xxxxxxxxxxxx> wrote in message
> news:1h51hbt.728yfhhqh4mwN%down@xxxxxxxxxxxxxxx
> > Araik Margarian <aramargar1@xxxxxxx> wrote:
> >
> >> "madiba" <down@xxxxxxxxxxxx> wrote in message
> >> > Araik Margarian <aramargar1@xxxxxxx> wrote:
> >> >> >> If many-many of you are such viciously orchestrated under criminal
> >> >> >> fascist civilized murderers, I can be "paranoid", poisoned,
> >> >> >> deliberately delayed in diagnostics and killed by illness and
> >> >> >> anything else..
> >> >> > QED
> >> >>
> >> >> What is QED?
> >> >>
> >> >> > But get a CXR and PET scan done anyway...
> >> >>
> >> >> Thanks for advice. The oncologist said cardio is OK but PET Scan is
> >> >> not
> >> >> good
> >> >> idea.
> >> > CXR to exclude lung mets, PET scan for other distant mets and
> >> > metastatic
> >> > LNodes. To exclude infiltration of the base of the skull the MRI is
> >> > better than CT.
> >>
> >> From another point, what it will change in treatment?
> >> >
> >> >> By the way, thanks for magnanimously giving positive advice while I
> >> >> was
> >> >> losing temper, which, while I apologise for some harsh wording,
> >> >> unfortunately, is not fully baseless. After that I recieved message
> >> >> that
> >> >> my Usenet account with "Newsfeeds.com has now expired" for some
> >> >> obviously
> >> >> fake reason.
> >>
> >> > Don't take it personally, but you do seem to have a problem.
> >>
> >> I've high-dosage immunity for 2,5 years.
> >> I wish I could trade now this NPC problem with what you mean.
> >>
> >> >But get that sorted out AFTER your NPC has been treated..
> >>
> >> OK, let me have treated NPC then I will voluntarily accept
> >> that I am schizo. Better live as schizo than die.
> >>
> >>
> >> >- BTW whats the histo
> >> > from the biopsy? -Ah, just found the other thread. Schminke tumor, easy
> >> > to treat.
> >>
> >> Easy to say that:
> >> I found this article:
> >> http://jjco.oxfordjournals.org/cgi/content/full/27/5/336
> >
> > So?
> > 1. T4 N0 M0 tumor (stage IV Ho) -comparable?
> > 2. G3 SCC -you have a Schminke - no comparison!
> > 3. Treatment was 20 years ago, things have improved since then..
> > 4. He survived about 10 years despite developing multiple mets..
> >
> > --
> > madiba
>
> I meant not the case itself which is even encouraging, but the following
> statistics of the article:
>
> "Although the median survival of all patients with metastatic disease has
> been reported to be 8 months (9 ), [lung only, 11.8-12.5 months (5 ,9 ),
> bone only 6.5-8 months (5 ,9 ), liver, 3.8-5.4 months (5 ,9 ), skin and
> lymph node involvement below the clavicle, 20 months (5 )], long-term
> survival is occasionally observed (5 ,8 ,9 ,10 )."
So?
Do you have mets?
Do you have a T4 tumor?
Its pointless looking at the worst case scenario when you are not it.
The HISTOLOGY is very important for prognosis with NPC.
> The doctor didn't give me TNM; He said he would do it later;
> But, at least it is T3 N2 M0, when I compare with definition. And I suspect
> that I could have mets too: I have itchy skin; some other symptoms I didn't
> have before.
Mets are usually not itchy..
> And, if I am going to be killed in several months or in a year by mets or
> so, ( and every death before 70 I think is killing in one way or another; no
> matter by "friendly fire" of treatment or "enemy" illness) isn't it better
> don't go into torture of treatment if there is no guarantee of survival and
> just pray for God's miracle ( as He did that once with Job)?
You may be correct IF you have metastases. But only maybe, because the
lymphoepith. should also be very sensitive to chemo.
You would right if you were talking about any typical head and neck SCC
or lung SCC if they were very big tumors, with mets.
> As it was "anti-miracle" that I could get almost totally South-Asian
> illness - NPC with LYMPHOEPITHELIOMA.
Why anti-miracle? You still dont understand, for NPC that histology has
the best prognosis! So its a miracle in a bad situation.
> Sorry for unorthodox view. At least I express genuinely what I think.
Thats OK
--
madiba
.
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