Canadian Cancer Registry (CCR)
- From: J <philomath@xxxxxxxxxxxxx>
- Date: Wed, 21 Dec 2005 03:01:41 -0500
<http://www.statcan.ca/cgi-bin/imdb/p2SV.pl?Function=getSurvey&SDDS=3207&lang=en&db=IMDB&dbg=f&adm=8&dis=2>
Canadian Cancer Registry (CCR)
Status: Active
Frequency: Annual
Detailed information for 2003
Data release ? July 11, 2005
The primary objective of the CCR is to provide a large database to study
cancer patterns and trends and to monitor differences in cancer risks
among different populations. Information about cancer incidence and
survival in Canada is generated by the CCR. The information is used for
descriptive and analytic epidemiological studies to: identify risk factors
for the cancer; plan, monitor and evaluate a broad range of cancer control
programs (e.g., screening); and, conduct research in health services and
economics.
The CCR is a dynamic database, maintained at Statistics Canada, of all
Canadian residents alive or dead who have been diagnosed with cancer. The
function of the Canadian Cancer Registry is to produce standardized and
comparable cancer incidence data for each newly diagnosed primary site of
cancer. The CCR is a patient-based system, in which are recorded the kind
and number (incidence) of primary cancers diagnosed for each person over a
number of years until death. The advantage of this system is that
longitudinal data is available for each cancer patient. New primary
cancers occurring for previous cancer patients are identified. The patient
data is regularly linked to mortality data so that the date and cause of
death of every cancer patient is eventually known.
In addition to information on cancer incidence, data is available about
the characteristics of patients with single and multiple tumours, as well
as about the nature and frequency of these tumours. Since patients'
records remain active on the CCR until confirmation of their death,
survival rates for the various forms of cancer can be calculated. In
addition, the CCR has the capability of identifying and eliminating the
duplicate reporting of tumours.
The CCR also employs specialized internal record linkage software for
detecting duplicate records and for clearing death records. These
procedures are done annually. Conflicting information and other problems
with the data uncovered by these annual processes are resolved through
consultation with the reporting provinces and territories.
Coverage
Since each Canadian province and territory has a Cancer Act and a
legislated responsibility for cancer collection and control, reporting is
virtually complete. All primary malignant tumours (except squamous cell
skin cancer and basal cell skin cancer) are reported to the Canadian
Cancer Registry (CCR). Each provincial and territorial cancer registry
records all cases of cancer in its population by combining information
from sources such as: cancer clinic files and radiotherapy reports;
records from in-patient hospitals; out-patient clinics and private
hospitals; pathology and other laboratory/autopsy reports; radiology and
screening program reports; reports from physicians in private practice;
and, reports on cancer deaths from Vital Statistics registrars.
Periodically, some provincial and territorial cancer registries experience
problems in submitting data to Statistics Canada on a timely basis.
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