Re: Low plattet questions (J)

J W <jonboy42@xxxxxxxxx> wrote:

Sat, Aug 19, 2006, 4:10pm From: macyinno@xxxxxxxxxx (J)
J wrote:

Do the numbers (lab tests) help your pain or improve your stamina or
quality of life ?
J

No they don't but I've got that CEA level so close to normal I hate to
give up just yet. Unlike every doctor I've talked to I still believ in
miracles and that there is a chance I can beat this monster. But if my
marrow gives up I can't fight anymore. As far as pain that has been
relatively low up until now with the neumega shots.. I don't know how
you guys take somethng that I spend a great deal of tie writing and
call one or two sentances. an answer. Is there any way/test to now if
the marrow situation is temporaary or more of a permnant issue. If I
could get this CEA down to 2-2 1/2 for just a couple of months I' feel
comfortable taing a longer break from chemo.

Take a break now because low platelet counts in this setting are often
an early warning sign of impending marrow failure.
Continue and your epitaph will read: 'in his long battle for the holy
grail (a cure) he wiped out his bone marrow, shortly thereafter
succumbing to sepsis'..
Don't put too much trust in tumor markers, they are a useful guide to
check for recurrence when someone is in remission but they are not as
reliable the other way round if one has already reached stage IV. CA
19.9 may have given you more info, eg if the gut was still infiltrated
but you'd need a series to see which way its going.
Looking back thru your posts I think the pain and problems you have in
the pelvic area are due to inflammation, a perianal fistula and the side
effects of neumega.
I find no info on your liver apart from the numbers going up. Has the
liver been scanned properly? Ultrasound, CT, or MRI? If its full of mets
it would explain the rising CEA, the pain you had there and the rising
liver function numbers, which do not have to be booze-related, they can
be mets/chemo.
--
madiba
.

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