Re: CYTOREDUCTIVE SURGERY & HIPEC SNAFU UPDATE

Have you heard of PSK before? I get my PSK from:
www.psktrammune.com.au

Do a search on PSK Australia on the web there is a lot of information
on benefits of this chinese mushroom extract. This may help you - the
company selling it in Australia is reputable. Hope this may be of
assistance - hang in there and dont give up.


J W wrote:
Hi folks,
Well I just got back from Baltimore, I was supposed to have
cytoreductive surgery and heated interperintonial chemo but did not get
it because these stupid florida doctors don't know their butts from a
hole in the ground

For the last year since my 12/22/05 diagnosis and initial debulking
surgery simply because of the type cancer I have (mucosinal colon cancer
with signet ring cells) I had signet ring cell mets to the omentum and
peritoneum which made me a stage 4. They were as much as was possible
removed via surgery.

The doctors have been convinced based on known history of signet ring
cell cancer alone with no evidence that the signet ring cell was the
problematic issue in my case causing the CEA to rise and the cancer to
progress. They said the signet ring cells are too small so they will
never show on any PET or CAT scans but based on the known history of
this type disease alone with no physical proof they were convinced I had
extensive abdominal/peritoneal cancers going on and that if they went in
they would find tons of cancer seeding. And that my high liver numbers
were from chemo toxicity alone and would correct themselves given time
since nothing was showing wrong with the liver on any scans or
ultrasounds.
What they did find when they went in via lapriscopy in baltimore last
week was that I had only 10 small nodules in my entire
abdomen/peritoneal area which were not cancerous. No cancer was found in
my abdomen. What they did see with the lapriscopy was that my liver was
very damaged and diseased (cirosis) from either being on chemo too long
or taking too much iron suppliments as ordered by my onc.As for the
cancer it has now been determined via PET scans which I've been asking
for since june of 06 and everyone said would be of no use since sgnet
ring cells would not show on PET scans, well the cancer is in my lymph
nodes alone and nowhere else. It is also by now very advanced, My CEA is
nearly tripling every week. Last week it went from 84 to 239 in seven
days. And to add salt to the wound we've now determined the first onc
who kept me on folfox too long and insisted that I take tons of iron
pills to keep my red blood count up (excessive iron damages liver)
caused damage to my liver that will probably severely limit how much 2nd
line chemo I can take to fight the cancer out of my system (Folfiri is
highly liver toxic). In short the first onc killed me, I'm just not dead
yet. My first surgery to remove the initial tumor, looking at the
surgery report and going to speak to surgeon face to face revealed the
liver was quite healthy pre chemo. So bottom line I and my ins. company
spent a lot of $$ to get me to baltimore to do what could have easily
been done here 6-8 months ago and may have saved my life had it been
done then when I was asking for it. But I'm just the patient, I'm not a
doctor. How could I possibly know what I need. My Oncologists went to
college in hapsbamadad yakistania or lord knows where since apparently
there are no more american doctors so they should know what I need or
don't need right??? They gave me one PET scan 3 months after sugery
which resulted inconclusive A. because it was done too soon after
surgery and showed false positives and B. my oncologist rahma
baliirambalbuba or some such nonsense (I won't give the correct spelling
of her name here in a public forum) admited she didn't know how to read
it. I've asked 2 oncologists since then for a second followup pet scan
and lapriscopy tosee what is going on in there only to be repeatedly
told that it would be of no use because the signet ring cells would not
show on it anyway and they felt based on CT and mri scans that I had no
disease anywhere else so the lapriscopy would only show what they
already knew for sure which was that my peritoneal cavity was filled
with cancer seeding. Ths turned out to be wrong.

The Baltimore docs just closed me up, said the cytoreductive surgery
would be of no use since there was no peritoneal disease and said all I
could do at this point was to go back on carefully monitored chemo due
to liver disease.
Any thoughts or recommendations? especially in the area of approaching
or treating he liver disease issue?

.