Clinical trial opinions?
- From: jonboy42@xxxxxxxxx (J W)
- Date: Sat, 10 Feb 2007 10:59:26 -0500
As you know I'm having to try and sift through 100s of clincal trials on
my own because my oncologists are too busy to bother with trials (their
words, not mine) Most I've called won't talk to me because I'm not a
doctor, the ones that will say that a CEA of 235 that is doubling every
2-3 weeks and retroperitoneal lymph nodes that light up like an xmas
tree on a PET scan yet appear normal size on a CT scan so far is not
enough to qualify. I need a solid measurable tumor which I pray that I
never will have again. Howver one they say I may be able to get into is
with a drug called sorafenib or bay 43-9006 given along with erbitux.
it's a phase two trial.
Do any of you know anything about this drug sorafenib? If so do you
think I'd fare any better with this than on the standard protocal of
CPT-11 and erbitux that my onc wants me on? I need to make a decision
quickly. I've been told from day one that any standard line chemo is
purely palliative and none would be curative so I know up front the best
case scenario with standard care is perhaps adding a few months. I was
hoping to get in a gene therapy or vacine trial but seems I can't
qualify for the ones I've seen so far.
I honestly don't know what to think anymore. These Oncs have been saying
since day one (13 months) that because my colon cancer tumor had signet
ring cell in it which had spread to peritoneum that they were absolutely
positive without a doubt that the steadily rising CEA and apparent
progression while on 1st line chemo was due to seeding in my peritoneal
cavity. they said there was no doubt that if they opened me up they
would find my belly full of them yet they were not big enough to show on
scans.
Well last month I went to Baltimore for cytoreducive surgery and heated
iterperitoneal chemo (HIPEC) based on their diagnosis. When the doc went
in to look around he found nothing but 8-10 tiny nodules that tested
negative for caner, so the procedure was called off.
Regards,
Jonboy
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