Re: Steph please, prognosis

Steph wrote:

"Dragonlady" <dragonlady@xxxxxxxxxxx> wrote in message
news:1171799334.929889.263240@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

She is saying - is me Phillipa Lucille Smith and I have my father in
laws medical file to show proof of lack of treatment and all his
prescribed medications from 1996 to his death in 1998. Had I known
then what I know now and I too have worked in the NHS, Post Graduate
Medical Education, until August 2005, I would have taken legal action
regarding this. Only having arrived in England 16 days before FIL
died and not knowing the system then, things would not have prevented
his death, but recourse to prevent others suffering the same way as my
Father in law did. This is why fully conversant with the NHS system
and the post code lottery regarding treatment, we were ready to get my
hyusband the best treatment available and still had to fight the
system. So please temper your remarks and check the facts on
individual cases

If you would like to review both Father in law and husband's files I
will make these freely available, so you can see the NHS and treatment
is a lottery.


Which remarks would you like me to "temper"?
I'm sure in the NHS could be better at times, just as care anywhere could.
But I was responding to a suggestion that someone was "denied" radiotherapy
for bone mets. I simply don't believe that. There has to be more to the
story, as I'm sure you know there is.

That was your response on Date: Sun, 18 Feb 2007
He's just had his next meeting with the clinical oncologist.
It was not the original one (who denied him access to RT) this time.
The new one is a junior who is trained in hospice care.
Radiation treatment for bone pain has been ruled OUT at the moment. Seems
that if Morphine or it's analogues are keeping control at levels less than
60 mg MST and 20 mg for breakthrough, they don't get referred for RT.
He did convince them to run another bone scan (July 10 before his next
appointment).
Other scans have been denied. They had promised him a CT scan (see below).

Background:
Diagnosed mid January - Scotland.
results of Bone-Scan - as follows:
"There is extensive metastatic disease involving the Skull Vault; the cervical,
thoracic and lumbo-sacral spine, bony pelvis, ribs, sternum, shoulders, elbows,
wrists, knees, ankles and digitals. There is a
concentration of metastic disease involving both proximal femora"

Head x-ray - shows a cluster of as yet unspecified abnormal cells located
between the (I forget now - but between two brain lobes) Chest x-ray - small
cluster of abnormal cells in the right upper lung.
Abdominal x-ray - two abnormal cell clusters on the liver.
CT-Scan to follow."

So he's got widespread bone mets. He stubbed and broke his toe on his way to
the first oncologist appointment. He's since fallen and broken his elbow and
now is concerned about pelvic and fingers(s) pain. This new onc (trained in
hospice) assured him that hospice would take care of him.

I'm telling you Steph that advanced prostate cancers are being back-burnered
for RT - in UK.


The first oncologist (he was seen by and denied RT) is the lead oncologist for
Glasgow.
Might be MB ChB, FRCP, FRCR
Memberships
British Uro-Oncology Group.
British Association of Urological Surgeons Section of Oncology.
J
(the patient is reading here, but has not posted)

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