Re: what to do where to look what to try


bob wrote:
I am post liver transplant of 4 1/2 years. I have been taking
prednison, prograf (tacrolimis) and cellcept plus painkillers and some
herbal, esp. milkweed.

I usually am lethargic, neuropathies esp in my feet and pains at the
scars of surgery and headaches. I have ok days and worse ones.

My thought was to get surgery to remove the last few decaying teeth and
reduce my rate of infections. I thought if I was healthy enough I could
try reduction in immune suppressants and then try interferon/antivirals
or what is best now.

The surgery broke a hole (fistula) in the bone between my mouth and my
infected sinuses. To fix this I was taken off prednisone within two
weeks in early February. This was very painful and feels like it is
still affecting me. I had surgery to fix the sinus infection which may
have helped, and in month, I am supposed to get surgery to fix the
fistula.

Last week, I went sort of nuts or something and was mostly asleep but
when forced to answer questions, I could not spell my name, my wife
seemed to me to be my girl friend and I was weepy and emothional. I
spent a few days in the hospital and they learned that I did not have
what they could test for. I personally have almost no memory of this
but do spend most of my time in bed, but remain productive as a genetic
researcher on microRNAs and biocomputing which I can do lying down and
is distracting from my pain.


My question is what to do. I was planning on taking
interferon/ribovarin which was told to me that I would have 85%
recovery rate because my genotype is II (a or b, can't remember).

Any ideas would be very welcome. My wife is scared and does not want me
to die. Some days it does not seem so bad to not suffer.

thanks,


bob

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