Re: A Story About Lyme Disease

From: longleggeddeapthroatslut (longleggeddeapthroatslut_at_yahoo.com)
Date: 06/27/04 

Date: Sun, 27 Jun 2004 18:17:49 -0400

"A_Weisman" <a_weisman@yahoo.com> wrote in message
news:e55e6d97.0406261255.7d4556a7@posting.google.com...
> jd8selena@aol.com (Jd8Selena) wrote in message
news:<20040626104017.04124.00000541@mb-m15.aol.com>...
> > http://www.buckmasters.com/Buckmasters_Links/Features/040122Die.html
> >
> > A Story About Lyme Disease
> >
> > By Jon Davis
> >
> > Six inches of snow covered the Ohio ground that December day in 1995. I
hit
> > the woods and found some very big tracks. I followed them and within a
few
> > yards found a "dead deer" lying at the treeline. Its ribs and spine were
> > showing, and its eyes were sunken. I decided to continue to my stand and
> > return later to investigate.
> >
> > After about an hour of hunting, I walked up again on the buck and was
> > surprised to find that it wasn't dead. It had merely been sleeping or
> > "playing possum." The buck rose and was obviously in bad shape. Its back
> > right leg was dragging above the knee, and its left was not looking
good,
> > either. Still, the buck managed to run.
> >
> > I followed it into the open field and found it standing broadside. The
> > decision to put the buck out of its misery came quickly, but I had no
idea
> > how tough this task would be. It took five arrows and a pursuit that
> > stretched the better part of a mile. But finally, the determined monarch
was
> > down for keeps. In fact, as the buck expired at 5 p.m., the local church
> > bells rang out "Joy to the World."
> >
> > The next day, I found out that someone I knew had wounded the deer
during
> > the shotgun season. It's an incredible 13-pointer that misses the BTR
> > minimum by less than an inch.
> >
> > These days, I don't chase deer. Even a foot race would be impossible. I
have
> > late-stage Lyme Disease and can hardly walk. There is a lot of confusion
> > clouding the diagnosis of this debilitating affliction, proper treatment
and
> > cure.
> >
> > Three ticks have bitten me - in 1991, 2000 and 2002. The third came
after
> > I'd been diagnosed with ALS, or Lou Gehrig's Disease, and was told I
would
> > be
> > dead in three to five years. Then in July 2002, I tested positive for
Lyme
> > Disease. All three tick bites had been on my scalp at the back of my
head. I
> > did not think to look for the telltale bull's-eye rash, but it might not
> > have mattered since only 50 percent of infected people get the rash.
>
> The figure may be lower. The medical literature reported 40-60% until
> the figure was reinvented in the late 90's and now is claimed to be
> 80-90%. But that is based on citation to studies in which a rash was a
> major entrance criteria. I think the original figures are probably
> more accurate. Of course since the rash can have so many varied
> appearances and easily be mistaken for other things, the figure may
> actually be lower.
>
> > We've all heard of Lyme Disease, but not many people know of the 40-plus
> > symptoms of this tick-borne ailment. Patients diagnosed with many other
> > ailments exibit the symptoms of Lyme Disease. These illnesses include
ALS;
> > multiple sclerosis; Parkinson's; gout; carpal tunnel syndrome;
hepatitis;
> > Epstein-Barr virus; ADHD; TMJ (jaw pain); Crohn's disease; Alzheimer's;
> > fibromyalgia; chronic fatigue syndrome; Bell's Palsy; lupus and some
forms
> > of arthritis. And Lyme Disease is present on every continent except
> > Antarctica.
>
> The list may be a little too long. Who knows? I don't think we have
> ever gone back and tried to sort out what symptoms are from Lyme alone
> as compared to Lyme + coinfections or coinfections themselves alone or
> in combination without Lyme. This is very confusing and it is
> perplexing why no one has tried to sort this out given the growing
> recognition of a significant percentage of Lyme patients with
> coinfections, something that was never considered when compiling
> symptom lists in the first place, over the last 25 years.
>
> This is an important gap in understanding from both the "llmds" AND
> the more mainstream doctor/"experts."
>
> > My first symptoms were tiny muscle twitches in my legs. These twitches
would
> > cause a single muscle strand to contract. Eventually, the twitching
spread
> > over my entire body. My legs began to feel weak and heavy, and I became
> > clumsier. Now, I never was what you'd call graceful, but this was
> > ridiculous.
>

That is when the nerve roots of the lower spinal area,are irritated,from the
bacteria.
> That is probably very unusual for an early symptom.
>
> > In November 2001, I was helping to erect a pole barn as part of a church
> > project. Climbing around in the rafters, nailing and screwing down the
***
> > metal roof, I became very aware of how my legs were weakening. Climbing
the
> > treestand ladders also was difficult. By the late-January bow season, I
had
> > to pull my legs up to get my feet on the next step.
>
> Again muscle weakness would be unusual as an early symptom. I don't
> know if the writer is referring to fatigue or a neuromuscular problem.
>
> > Throughout the next year, it was apparent that I was in trouble. People
> > asked if I'd hurt my back or legs. My walk was different. I developed a
> > double-foot droop. The Lyme Disease was into my nervous system,
> > deteriorating the signal from my brain to my muscles. In December 2002,
I
> > forbade myself from driving for safety's sake. I could no longer move my
> > foot from the gas pedal to the brakes without lifting my leg with my
hand.
> > And getting up a tree was out of the question.
> >
> > So we improvised. We bought an ATV and set up a ground blind so I could
try
> > to continue my hunting passion. I had been lucky to take a deer each of
my
> > first 14 seasons, but I had not shot one in the last two years. However,
my
> > cousin, Dave, called in to 22 yards a jake that I shot in Miami County
last
> > May. (Thank you, Ohio Department of Natural Resources, for repopulating
> > those beautiful birds!)
> >
> > Lyme Disease can do more than take away your motor skills. You can lose
> > eyesight, hearing, speech and even the ability to swallow and breathe.
If it
> > goes undetected for too long, you could die. The Lyme symptoms closely
> > resemble those of ALS and MS. Lyme can cause mental anxiety, depression,
> > weight loss or gain, sleepless nights and drowsy days. It is the "great
> > imitator" of other diseases.
>
> I think it would be more accurate to say that Lyme symptoms CAN
> closely resemble ALS or MS. Diaphragmatic paralysis would be very
> rare. While ocular symptoms are not rare, the implication that
> blindness is common is misleading.
>
> Hearing loss is not an early symptom nor a common one. But it does
> occur.
>
> > The most common Lyme test, the ELISA, is only 10 percent accurate.
>
> This is a ridiculous figure. Where does this come from? The lowest
> figures ever documented are 20-40% accurate. Typically figures are
> cited as 60-80%. Somewhere in the middle of all that is probably close
> to true. Depending on when the test is performed vis a vis infection.
> And other factors including whether there has been prior treatment.
> And whether we're talking IgG or IgM. High variability in accuracy
> between labs has been reported.
>
ridiculous figure,,,,,You are nuts,no-one has a standardized lyme test.And
what is out there,is garbage.

> >Others,
> > like the Antibody Capture, IgC and IgM Western Blot, are about 65
percent
> > accurate within the first 4-12 weeks of infection and less than 50
percent
> > accurate through the next two years.
>
> Antibody capture? Is this referring to the same Elisa test discussed
> above or what?
>
> I also don't know where these figures for WB come from. Part is
> obviously dependent on the lab and on the criteria used to determine
> positivity.
>
> >These tests are also known for showing
> > false positives and false negatives. The most accurate tests are the
Lyme
> > Culture and the PCR test, which checks for actual RNA/DNA of live
bacteria.
>
> Lyme culture is notoriously difficult though it is considered the
> "gold standard."
>
> PCR can be thought of as accurate if there is a positive assuming the
> lab is reliable. But negatives are not particularly reliable.
>
> > The Lyme bacteria are in the spirochete family and are possibly sexually
> > communicable.
>
> Emphasize POSSIBLY. Absolutely no proof one way or the other.

YOU sure answered this question yourself.......Absolutely no proof one way
or the other.

>
> > Since the microorganisms are present in most bodily fluids,
> > they can be spread through blood transfusions and have the potential to
be
> > passed from mother to child at conception or through breast milk.
>
> I agree with the above paragraph. Emphasize POTENTIAL. We don't know
> how frequently or how rarely that occurs.

POTENTIAL,,is what your saying,IT can happen.
>
> > The scariest part of all this is that the medical community treats this
> > potentially fatal disease with just 4 to 6 weeks of antibiotics.
>
> Actually two doses of doxycycline are now recommended for very recent
> infection. Unfortunately this advice which applies to a very limited
> time frame has been misinterpreted and misapplied to even later stage
> cases due to poorly informed doctors.
>
> The medical literature and guidelines indicate that "adequate"
> treatment might be as short as 10 days, 14 days, 21 days, 28 days or
> 30 days. I don't know much mainstream literature if any that
> recommends treatment in most cases for six weeks. And IV is considered
> "indicated" in only very rare cases such as meningitis confirmed by
> lumbar punctue and high degree heart block severe enough to require a
> temporary pacemaker.

The medical literature and guidelines ,is what makes cripples out of a
treatable illness.
>
> >But mature
> > bacteria can go into cyst form for 6 months or longer and reemerge,
> > according to Lyme expert Dr. Greg Bach of Colmar, Pa.
>
> Lyme "expert" Greg Bach? LOL Many nightmare stories about this guy.
> Even on LymeNUT many don't recommend this guy.
>
> > In severe cases, it takes several months and, in some cases, years of
> > rotating different antibiotics at high doses to control the disease.
Last
> > June, I had a Mediport installed so I can take 2-gram shots of IV
Rocephrin
> > per day for 3 to 6 months. Needless to say, this can create problems
with
> > insurance companies.
>
> 2 gm shots? Does this mean IV? Or IM? Why would anyone give IM shots
> for such a long time when there could be IV? IM is not a pleasant drug
> delivery system.
>
> > If you are experiencing any of the symptoms, especially if you know a
deer
> > tick has bitten you, contact a Lyme Disease website listed below. If you
do
> > have Lyme Disease, you cannot afford to let it get out of control. Take
it
> > from me. I'm 43 and can barely walk around my own home. My wife's
symptoms
> > include panic attacks and headaches. But she has been terrific
throughout
> > this terrible ordeal.
> >
> > Don't let your family doctor be the only source for accurate diagnosis
of
> > this disease. I urge you to seek a professional who is familiar with
Lyme
> > and similar diseases. Just be thorough and persistent in your treatment
> > options. I must thank my friend, Jack Miller, who sent us in the right
> > direction. He once had a customer who had been diagnosed with ALS and
was
> > found by Dr. Bach to in fact be suffering from Lyme Disease. Thank God
we
> > didn't settle for the death sentence.
>
> I hear the doctor in question diagnoses EVERYONE in his practice with
> Lyme disease and every other tickborne disease known to humankind.

That is what you illiterate basterds,say about any doctor,none of us should
have lyme.You seem to have all the answeres.
How about posting the name of some doctors you suggest for the treatment of
this illness?????
>
> And lots more nightmare stories.
>
> > Get the Facts......Yes you both need to get the facts.
>
> Yup!
>
> > A bill has been introduced in the U.S. Senate that would provide crucial
> > funding for education and research on Lyme Disease. Please contact your
> > congressmen and state senators in Washington, D.C., and ask for their
> > support of the bill.
>
> It would be the worst thing for Lyme disease since Dr Steere.
>
> >The medical information presented in this article is
> > supported by Dr. Gregory Bach D.O., P.C., a congressional consultant on
Lyme
> > Disease.
>
> What a joke. "congressional consultant" my ass.
>
> >A brochure on Lyme is available by calling (610) 388-7333. For Lyme
> > Disease resources on the web, visit the following sites:
> > . ilads.org (medical/professional org.)
> > . lymenet.org (general info., with many links)
> > . lymediseaseassociation.org (Lyme-literate doctor referrals)
> > . lymepa@comcast.net (e-mail)
> >
> > Jon Davis - jondavis@woh.rr.com
>
> I wish the author luck.
>
>
> >
> >
> >
> > copyright © 2004 Buckmasters Whitetail Magazine

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