Re: do i have a disease? don't know where else to go...
From: Frank de Groot (franciad_at_online.no)
Date: 09/05/04
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Date: Sun, 5 Sep 2004 13:49:12 +0200
"mike" <kmikek@gmail.com> wrote in message
> first let me apologize is this is in the wrong area. i looked for a
> general "diseases" group but didn't find one. if there is a better
> place please point me there and i'll be happy to go.
No, you have come to the right address.
> First off, I have had lots of blood work done, even for HIV and
> diabetes, all OK.
Welcome to the world of tests that are unreliable as heck..
Lyme is basically untestable with any test. It's called a "clinical
diagnosis".
So a negative test means nothing.
> I still haven't done my blood tests for led,
> mercury,
Hm.. That is not tested through blood samples, but with hair & nails.
> and a few others, but by doctor doesn't seem to think those
> results will mean much (nor do i). i am very scared because my whole
> life i never had headaches, and now i've had one for the last three
> months EVERY SINGLE DAY.
This answers your question "am I sick". The answer is "yes".
And you should be worried, as the head contains the brain and you need your
brain to write software.
(I am also a programmer).
> granted, they come and go throughout the
> day, but i can tell they're there, nonetheless. the only thing off
> the top of my mind i haven't done is an MRI.
Never mind. Useless.
A hi-res SPECT scan interpreted by an expert MIGHT in very bad cases show
something.
> sit in front of a computer not only at work, but at home as well.
> may sit in front of the computer up to 12 hours a day.
I sit 15 to 18 hours/day in front of the PC and I have chronic headaches
too.
But I fear yours will get worse and mine better. And my headaches prevent
concentration, yours too?
Those headaches can be caused by inflammation of the capilarry veins, or by
vasoconstriction of larger bloodvessels. Is it localized and always the same
spot? How bad is it? I is cyclical?
Does it change with coffee or alcohol?
> you who think this may be my cause, please read on... 3 months ago,
> when this all started, my headache wasn't my only symptom. if my
> headache was my only symptom, i probalby wouldn't be worried so much.
> but 3 months ago, i woke up sick out of the blue. stomach ache,
> headache, couldn't eat all day and had a fever that night. the next
> day i was much better, but the headache and stomach ache lingered.
It could be a virus too.
> over the next few weeks i started getting more symptoms, like itchy
> skin, fatigue, weakness in my legs, tingling in my feet, redness in my
> lower legs when i stood or walked.
OK, this is a neurological problem, that's for sure.
And the connection with the fever means that it is likely of infectious
origin.
What you should do is test whether it's a virus or a bacterium.
Take 1 month of doxycycline, 300 mg/day. If there is improvement or if you
get a Jarish-Herheimer reaction (temporary exacerbation of symptoms) then
it's a bacterium.
You can't do much against a virus.
> today, more than 3 months later,
> my headache is consistent as clockwork, my appetite is back to normal,
> stomach aches seem to be gone, feet tinglign and numbness in lower
> legs seem to be ALMOST gone, and all other symptoms seemed to have
> disappeared as well. it appears everything has slowly gotten better,
> EXCEPT my headache.
It might be Lyme, it might not be.
>and the only thing else i can' complain about is
> that i still seem a bit more tired than usual all day. i'm yawning
> all day long and it's hard for me to get through the weekends without
> napping. my headaches feel like tensions headaches, and they are at
> various parts of my head at any given moment.
Great, you are answering my earlier questions.
It might be Lyme, it might not be.
It might be due to neurotoxins circulating beyond the blood-brain barrier
and irritating the walls of the bloodvessels. They contract and that causes
headache.
Those neurotoxins are produced by Lyme (Borreliae).
> sometimes, the back.top
> of my head even hurts to the touch. is THIS a usual characteristic of
> a headache?
Hm, hurting to the touch, that's not typical Lyme headache I believe.
> i hope there's someone on the net that can help me find out what's
> going on, and i hope it's nothing to worry about. i'm going to get a
> second opinion from another doctor.
No, it surely is something to worry about.
Second opinion is extremely useless.
Most here had 12 docs before diagnosed, but most in general will never get
diagnosed.
> thanks fo rany help anyone can provide.
You need to do many searches for what exactly is wrong with you.
Exclude all and you will be left with what is the matter with you.
If you have just headaches it is hard to say what's wrong but when sx.
return or appear, you should try to find out which diseases fit the clinical
picture.
In the meantime, be vigilant. Don't trust tests. Sleep a lot, Eat healthily.
When you experience cardiac problems (Might happen with Lyme), make an
appointment with a cardiologist immediately and tell him you fear infectious
etiology. But the very best solution os to take a course of doxycycline to
test reliably whether it is Lyme.
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