Re: do i have a disease? don't know where else to go...
From: mike (kmikek_at_gmail.com)
Date: 09/05/04
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Date: 5 Sep 2004 14:33:31 -0700
"Frank de Groot" <franciad@online.no> wrote in message news:<e3D_c.5149$WW4.73603@news4.e.nsc.no>...
> "mike" <kmikek@gmail.com> wrote in message
>
> > first let me apologize is this is in the wrong area. i looked for a
> > general "diseases" group but didn't find one. if there is a better
> > place please point me there and i'll be happy to go.
>
> No, you have come to the right address.
>
> > First off, I have had lots of blood work done, even for HIV and
> > diabetes, all OK.
>
> Welcome to the world of tests that are unreliable as heck..
> Lyme is basically untestable with any test. It's called a "clinical
> diagnosis".
> So a negative test means nothing.
>
>
> > I still haven't done my blood tests for led,
> > mercury,
>
> Hm.. That is not tested through blood samples, but with hair & nails.
perhaps. i wasn't really paying attention.
> > and a few others, but by doctor doesn't seem to think those
> > results will mean much (nor do i). i am very scared because my whole
> > life i never had headaches, and now i've had one for the last three
> > months EVERY SINGLE DAY.
>
> This answers your question "am I sick". The answer is "yes".
> And you should be worried, as the head contains the brain and you need your
> brain to write software.
> (I am also a programmer).
aren't there thousands of people walking around with all kinds of
symptoms caused by non-fatal conditions like stress? are you telling
me i am sick beyong a doubt because of symptoms?
> > granted, they come and go throughout the
> > day, but i can tell they're there, nonetheless. the only thing off
> > the top of my mind i haven't done is an MRI.
>
> Never mind. Useless.
> A hi-res SPECT scan interpreted by an expert MIGHT in very bad cases show
> something.
>
>
> > sit in front of a computer not only at work, but at home as well.
>
>
> > may sit in front of the computer up to 12 hours a day.
>
> I sit 15 to 18 hours/day in front of the PC and I have chronic headaches
> too.
> But I fear yours will get worse and mine better. And my headaches prevent
> concentration, yours too?
no offense, but are you trying to help or make things worse? thanks
for not sugar-coating anything, but how can you say you think mine
will get worse and yours better??
> Those headaches can be caused by inflammation of the capilarry veins, or by
> vasoconstriction of larger bloodvessels. Is it localized and always the same
> spot? How bad is it? I is cyclical?
> Does it change with coffee or alcohol?
i don't drink either.
> > you who think this may be my cause, please read on... 3 months ago,
> > when this all started, my headache wasn't my only symptom. if my
> > headache was my only symptom, i probalby wouldn't be worried so much.
> > but 3 months ago, i woke up sick out of the blue. stomach ache,
> > headache, couldn't eat all day and had a fever that night. the next
> > day i was much better, but the headache and stomach ache lingered.
>
> It could be a virus too.
what kind of virus? can a non-harmful virus cause all this for
several months? will it go away?
> > over the next few weeks i started getting more symptoms, like itchy
> > skin, fatigue, weakness in my legs, tingling in my feet, redness in my
> > lower legs when i stood or walked.
>
> OK, this is a neurological problem, that's for sure.
> And the connection with the fever means that it is likely of infectious
> origin.
> What you should do is test whether it's a virus or a bacterium.
> Take 1 month of doxycycline, 300 mg/day. If there is improvement or if you
> get a Jarish-Herheimer reaction (temporary exacerbation of symptoms) then
> it's a bacterium.
>
> You can't do much against a virus.
please explain to me what the difference of being virus related or
bacterium related.
> > today, more than 3 months later,
> > my headache is consistent as clockwork, my appetite is back to normal,
> > stomach aches seem to be gone, feet tinglign and numbness in lower
> > legs seem to be ALMOST gone, and all other symptoms seemed to have
> > disappeared as well. it appears everything has slowly gotten better,
> > EXCEPT my headache.
>
> It might be Lyme, it might not be.
>
> >and the only thing else i can' complain about is
> > that i still seem a bit more tired than usual all day. i'm yawning
> > all day long and it's hard for me to get through the weekends without
> > napping. my headaches feel like tensions headaches, and they are at
> > various parts of my head at any given moment.
>
> Great, you are answering my earlier questions.
> It might be Lyme, it might not be.
> It might be due to neurotoxins circulating beyond the blood-brain barrier
> and irritating the walls of the bloodvessels. They contract and that causes
> headache.
> Those neurotoxins are produced by Lyme (Borreliae).
>
> > sometimes, the back.top
> > of my head even hurts to the touch. is THIS a usual characteristic of
> > a headache?
>
> Hm, hurting to the touch, that's not typical Lyme headache I believe.
>
>
> > i hope there's someone on the net that can help me find out what's
> > going on, and i hope it's nothing to worry about. i'm going to get a
> > second opinion from another doctor.
>
> No, it surely is something to worry about.
> Second opinion is extremely useless.
> Most here had 12 docs before diagnosed, but most in general will never get
> diagnosed.
there you go again making me feel better. :) it's SURELY something to
worry about? like i said earlier, why can't i be a perfectly healthy
person just coming down with something temporary or under a lot of
stress? i personally don't believe stress can do all this to a
person, but "stress-related" is all i got right now. are you saying i
surely have some disease? are you saying i'm surely infected by
something serious? please explain before i get more stressed.
> > thanks fo rany help anyone can provide.
>
> You need to do many searches for what exactly is wrong with you.
> Exclude all and you will be left with what is the matter with you.
> If you have just headaches it is hard to say what's wrong but when sx.
> return or appear, you should try to find out which diseases fit the clinical
> picture.
>
> In the meantime, be vigilant. Don't trust tests. Sleep a lot, Eat healthily.
> When you experience cardiac problems (Might happen with Lyme), make an
> appointment with a cardiologist immediately and tell him you fear infectious
> etiology. But the very best solution os to take a course of doxycycline to
> test reliably whether it is Lyme.
i do appreciate you taking the time to respond, but you've really
scared me. you've made it sound like i have some serious disease for
sure, and that it can't be attributed to something temporary or
harmless. i hope this was not the message you intended to get across.
my opinion is that it's possible i have some serious illness, but
these symptoms can be attributed to many things, many
non-serious/fatal things, right?
i really doubt i have lyme. wouldn't i have known if i got bitten by
a tick? and i don't spend time outdoors much (typical computer geek).
can i ask what your background is? do you have lyme?
thanks again, and i do appreciate your response.
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