Re: PA needs help passing Lyme legislation

From: A_Weisman (a_weisman_at_yahoo.com)
Date: 11/29/04 

Date: 29 Nov 2004 04:57:35 -0800

GregGerber@hotmail.com (Greg Gerber) wrote in message news:<146041df.0411282014.10868711@posting.google.com>...
> derdrittemann2003@yahoo.com (derdrittemann) wrote in message news:<f2af2263.0411281537.1c9a271@posting.google.com>...
> What is more
> > important, perhaps...politically...is the perception of utter and
> > complete failure to follow research that is unfavorable to the
> > mainstream view. We should be demanding an explanation...
>
> it is my opinion that demanding research from federal agencies will
> deliver more of the same and that Lyme patients should be funding
> their own research and partnering with biotech to the best of their
> ability. It is my opinion that this strategy, above all other
> strategies, is what is required to turn things around --and that
> things will never turn around, no matter how many bills are passed,
> until this becomes the MAJOR focus. I would not waste one ounce of
> energy demanding NIH do the work but I would expend considerable
> energy in raising money to fund this work at a top research
> institution independent of NIH. GG

A freaking men!

This is about 100,000,000 % right dead on the money.

and to sir dir: Look at the other disease advocacy groups. MS,
muscular dystrophy, AIDS, breast cancer, heart disease, alzheimers,
you name it. They raise BIG $$$ annually.

They do it through dinners, walks, runs, telethons, concerts, fashion
shows, golf outings, matching funds by employers, taking stock, cars
and cash.

Can we do it? Well first thing stop with the action alerts and wild
goose hunts and everyone spend that same time doing one of these
things.

It is possible. And once we've done some of the basic research we then
have a good case for NIH funds and more of them.

By the way for all the complaints we make about NIH funding all going
to Yale and Steere etc, no one can show you the "llmd" proposals that
have been submitted and rejected.

Fallon's about the only one who ever seriously tried to get NIH
funding.

And he got it.

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