Re: you really want to be active in the fight for lyme rights?

a_weisman_at_yahoo.com
Date: 12/24/04 

Date: 24 Dec 2004 12:20:36 -0800

GregGerber@hotmail.com wrote:
> The true answer for Lyme patients would be to fund their own research
> and execute it through independent partnerships with academia and
> ultimately biotech ...this is a long-range plan, but it need not be
> that long-range. Other diseases have followed this model to great
> success. Execution here requires an experienced professional who can
> navigate across science and venture capital and fund-raising in a
major
> way. A seat at the proverbial table can backfire big-time, and
already
> has. As long as some patients continue to seek research partnerships
> with NIH and CDC, the rug will continue to be pulled out from under
> them, as history has shown. But some never learn their lessons,
> apparently, those trusting souls, to the detriment of us all. GG

Absolutely 100,000% agree.

THIS is the plan Phyllis. It is the ONLY viable plan.

I don't know, however, why anyone needs to partner up with US?

What do WE have to offer?

Or any disease advocacy group?

And what are examples of the biotech disease advocacy group hookups?
And the success stories?

But I do agree that the answer, the only answer is doing it ourselves,
funding it ourselves, directing it ourselves.

And putting an IMMEDIATE HALT to all the political nonsense.

Again, to Karen & Tom, Phyllis, Ellen, and "the pat" (and her
unquestioning minions):

YOU'RE ALL FIRED!

HAPPY HOLIDAYS!