Re: In Praise of Lyme Activists

GregGerber_at_hotmail.com
Date: 12/29/04 

Date: 29 Dec 2004 07:39:07 -0800

I will make my answer to these posts relatively brief. I conside Pat
Smith, president of LDA, to have an official leadership position and
true power. I have never heard her say that everyone who gets Lyme
disease gets desperately sick, but she has addressed the issue of the
treatment failures many times in many official speeches and statements.
If you are saying she said something YOU need to prove it --you need to
prove the positive, don't ask me to prove the negative, it doesn't
exist. I am not gonna clutter this newsgroup with statements and
speeches lacking the claims you say are made --that would be all of
them. No I do not consider Lisa or Kathleen to be leaders or people
with any official role. I do not want to continue with this argument, I
consider it ridiculous.

Finally, you are not understanding what I am saying about the clones
--the fact is that a significant percent of strains are proven never to
disseminate in the human host, ever, meaning they cannot, by their
nature, cause anything but the rash. When you count these people in a
Lyme study (and say that treatment worked for them) and do not quantify
their number or differentiate between them and patients infected by the
true disseminating strains, you have a study rendered meaningless by
noise, not a study that "has meaning for those in it." Instead, you
have a study without any real meaning for how a particualr individual
with a known, particular strain will respond to treatment in the
future. The sudy is telling patients that their treatment efficacy
amounts to the toss of a coin, and not any biological reality. It is
as if I tested those with either Lyme disease or a freckles and failed
to distinguish between then two groups but counted all of them as
having potentially disseminating Lyme disease and said the treatment
was great because those with the freckles did not develop late stage
Lyme disease. The study becomes statistically ludicrous and cannot tell
us what is going on.

I am happy to explain this in more detail --but the response you gave
was in many parts irrelevant to this and not understanding of what I
meant.
 
GG

Relevant Pages

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  • "Lyme Disease: Two Standards of Care" written by CALDA Director
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  • Re: Controlled trial ABX persistant lyme
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