Re: In Praise of Lyme Activists

From: Rita Stanley (rlstanleyNOSPAM_at_comcast.net)
Date: 12/30/04


Date: Thu, 30 Dec 2004 23:24:18 GMT


-- 
Iraq in pictures
 http://fallujapictures.blogspot.com/
"zipzip" <mcpucho@hotmail.com> wrote in message 
news:1104435682.549728.322560@c13g2000cwb.googlegroups.com...
>
> Rita Stanley wrote:
>
>>These 'professionals' were sheep.
>
> baaaahhhhh!
>
>> Self-censoring, refusal to question, keeping others from "rocking the
>
>> Lymeland boat"--what rot. Look at the mess Lymeland is in. Where is
>> reasonableness?
>
> shizer... i'm at a loss to answer that one!  socrates is rolling over
> in his grave, laughing!  aristotle on the other hand is fuming.
>
>> Stand back and look at what non-IDSA actually looks like:
>> fringe and flaky; salt cures, and sputniks, 5 anti-microbials rotated
>
>> willy-nilly, and cat's claw, heparin and quinolones and questran and
> etc
>> etc.
>
> to be fair, you are grouping together the super fringe with some
> reasonable dr's.  but your point is understood all to well.  the FDA
> has to stop this insantiy of unregulated supplements, etc.  they are
> doing it in the EU, hopefully we will follow suit.  nothing wrong with
> rotating antimicrobials, just not "willy nilly".
Willy nilly is done. No thought need apply.To be fair, it isn't fair to 
throw a bunch of antimicrobials at paients without reason.
I have heard from hundreds of patients over the years, and what used to be 
reasonable approaches has now morphed into willy nilly hypotheses du jour.
 don't understand
> your complaint against quinolines specifically though except for the
> problem of building up abx resistance.
Quinolone problems (and believe me, I have seen 'em in patients): 
http://www.geocities.com/quinolones/  And, again, I have seen this one 
thrown at patients w/o much thought or just to see how they respond - 
'experiments'.. AND they are not made aware (oh, now there is a growing 
awareness) of the side effects. Remember SG folks hear it all.
>
> what the hell is a sputnick... no wait i don't want to know, honestly.
Oh, yes you do. If it occurs in Lymeland, and it is done by a 
self-proclaimed 'llmd', and if people are referring patients to this 'llmd', 
keeping the lid on this is unacceptable.  Remember the fringe case study I 
posted? It was in response to the OHME OHMY conference. Reposted for you to 
ponder:
Fringe Practice Case Study
Patient X contacted me to find out if he was being treated appropriately for
Lyme disease.  He also wanted me and others to be aware of what he went
through.
X lived in the NW, and suspected he had Lyme disease. He went to the
internet and interacted on a bulletin board to find a doctor. He was told to
find a 'llmd'. He asked about an 'llmd' in the NW and was given a name.
X visited the 'llmd' and was diagnosed to have Lyme disease using a machine
and confirmed with Bowen testing.
X was submitted to another machine which required 2 people and himself to
decide what herbs to take. He asked me if I had every heard of such a
devise. I said, "hellno".
X was told to purchase herbs. His two week supply cost $375.
X was also sold the Sputnik
http://www.meridian.ie/Meridian_Products/Meridian_Remedies/The_Sputnik/the_sputnik.html .
He was told to use this "just in case". He was told to use the device 3
times. In other words, he was to swallow it, and retrieve it from his stool,
clean it off and repeat the treatment process. He was to look through his
stool for anything that looked like 'parasites' and to bring them in on his
next visit. He found nothing. He only used the device 2 times because he
could not bear to do it again. X stated that it was difficult for him to
swallow the Sputnik because he had bridgework and the electric shocks made
it 'tricky' to get past his mouth. It took over two days to pass through his
GI tract. During that time, he could feel the schocks as it went through his
system. At one point he felt it 'must have affected a nerve' because his
foot started to 'jerk around'. X stated he was glad he was not driving when
this happened.
X had a history of allergic reactions to bee stings. All his life he was
told to stay away from bees and to keep an epinephrine kit handy. The 'llmd'
wanted to do bee venom therapy on X. X told 'llmd' about allergy and was
told not to worry. X submitted to the first of several prescribed bee venom
therapies which consisted of injections on his back. X had a severe allergic
reaction. The doctor wanted to continue with the next therapy session, but X
had had enough.
X spent about $2,000.
He was unaware of this http://www.ama-assn.org/ama/pub/category/2509.html
Comment: This is way beyond reasonable alternative practices. I've used and
studied about judicious alternative medicine since 1997, so I am fully aware
of the differences.
>
>> Believe what you want Lymeland. It's all yours.
> thanks for the trojan horse!
> 


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