Re: Hey Phyllis, We're Waiting...

a_weisman_at_yahoo.com
Date: 01/02/05 

Date: 2 Jan 2005 13:10:02 -0800

Phyllis FYI and for your convenience, here is what we're wating for
responses to, first your "history" of "the pat" and LDA jersey and my
reply including questions::

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p...@direcway.com Dec 29 2004, 11:58 am show options

Newsgroups: sci.med.diseases.lyme
From: p...@direcway.com - Find messages by this author
Date: 29 Dec 2004 11:58:59 -0800
Local: Wed, Dec 29 2004 11:58 am
Subject: Re: In Praise of Lyme Activists
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Just for the record: Several years ago, after the resignation of
previous president Kerry Fordyce, members of the Lyme Disease
Association of New Jersey begged Pat Smith to accept a leadership
position in LDANJ because of her experience, track record of
achievements, and ability to work with others. Subsequently, LDANJ
decided to become national in focus, becoming LDA. This decision was
welcomed by many active groups in the Lyme community since we felt a
need for an umbrella group we could support and work with. Since then
many groups have joined LDA as affiliates and chapters. LDA has already
funded dozens of research projects and with its affiliates has raised
over $3.5 million to fight Lyme disease. Their motto is "Find A Cure."
To find out more about LDA, visit their website
www.lymediseaseassociation.org.

>>From personal experience, Pat Smith is a straight-shooting,

hard-working, no-nonsense, skilled and dedicated patient advocate and
it is my honor to work with her and with other LDA affiliates. 

--
Phyllis Mervine, President
California Lyme Disease Association
Affiliate of the Lyme Disease Association, Inc.
PO Box 1423
Ukiah, CA 95482
Check our websites
calda.intranets.com
www.lymedisease.org
www.lymetimes.org
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a_weisman@yahoo.com   Dec 29 2004, 1:33 pm     show options
Newsgroups: sci.med.diseases.lyme
From: "a_weis...@yahoo.com" <a_weis...@yahoo.com> - Find messages by
this author
Date: 29 Dec 2004 13:33:53 -0800
Local: Wed, Dec 29 2004 1:33 pm
Subject: Re: In Praise of Lyme Activists
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p...@direcway.com wrote:
> Just for the record: Several years ago, after the resignation of
> previous president Kerry Fordyce, members of the Lyme Disease
> Association of New Jersey begged Pat Smith to accept a leadership
> position in LDANJ because of her experience, track record of
> achievements, and ability to work with others.
Well I can't say that you didn't give us all a xmas gift Phyllis with
this load of hooey! Of course, given your ridiculously pollyanish spin
on EVERYTHING, who could be surprised?
But it is absolute and utter bull***.
Now could you please be specific about the following:
1. Pat's "experience" that qualified her to lead anything? And
particularly a disease advocacy non profit Lyme disease organization?
2. Her "track record of achievements" SpecificallY WHAT?
3. Her "ability to work with others" ??? In what context, who said
this,. WHO did the "begging" etc. and by "members of the LDA" since
there were no "members" at the time LDA new jersey NOT being a
membership organization, who the F are you talking about?
And I'll say that this is NOT what happened AT ALL and I don't know
where you heard of this?
NEXT:
>Subsequently, LDANJ
> decided to become national in focus, becoming LDA. This decision was
> welcomed by many active groups in the Lyme community since we felt a
> need for an umbrella group we could support and work with.
1. Who appointed you spokesperson? Who exactly do you mean by "we" in
the above statement? And who is "many active groups"? Why not work with
LDF?
>then
> many groups have joined LDA as affiliates and chapters.
"Many groups" have joined? How "many" including your group? Are you
referring to the "many" of the FIVE listed on the website, unless you
want to count LymeNUT? Which ain't an "active support group" by any
means, it is a bunch of total whack jobs on the FLASH board.
Not to mention the kansas city group or the national capital group who
brought us the WONDERFUL Nightline episode and the comparison of
treating Lyme a bacterial infection with antibiotics while the germ
persists to drinking urine as a therapy! Great job monte and greg
skall!
Yeah that's ALMOST as wonderful for Lymeland as your wonderful work on
the chronic Lyme klempner study phyllis.
Didn't you get the message Phyllis: YOU'RE FIRED!
>LDA has already
> funded dozens of research projects and with its affiliates has raised
> over $3.5 million to fight Lyme disease.
Mostly money misspent spending based on who's a favorite of "the pat"
NOT based on scientific or medical merit at all.
Some of the most questionable and dubious projects have been funded.
AND too much money spent on this legislative bull***, including hiring
lobbyists to fight the LDF as much if not more than fight for passage
of this potentially disastrous bill!
What a waste!
> Their motto is "Find A Cure."
Gee that is SO inspiring.
>To find out more about LDA, visit their website
> www.lymediseaseassociation.org.
OR if you want to skip the self serving self aggrandizing BULL*** just
come here and we'll tell you the TRUTH.
>>From personal experience, Pat Smith is a straight-shooting,
> hard-working, no-nonsense, skilled and dedicated patient advocate and
> it is my honor to work with her and with other LDA affiliates.
She's a freaking self serving egotistical battleaxe bent on serving her
own ego notwithstanding what is good for the cause IN MY OPINION! And I
ain't alone!
> --
> Phyllis Mervine, President
> California Lyme Disease Association
> Affiliate of the Lyme Disease Association, Inc.
> PO Box 1423
> Ukiah, CA 95482
> Check our websites
> calda.intranets.com
> www.lymedisease.org
> www.lymetimes.org
Hey thanks again for signing off on that Klempner study Phyllis. GOOD
WORK!
God with people like you working "for" us, do we even need enemies?
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