Re: you really want to be active in the fight for lyme rights?
GregGerber_at_hotmail.com
Date: 01/03/05
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Date: 3 Jan 2005 06:05:01 -0800
Weisman, when you suggest doing research inhouse I don't think you are
appreciating the cost of creating the modern biomedical laboratory in
which the endgoal is product --the lab capable of going from culture to
animal models to the the kind of "mass produced" turnkey research that
the goal of a cure requires. The idea of a group like this is to be a
strategic thinktank that supplies and directs funds --with the sole
purpose of finding a cure. Look at what they are doing at the Juvenile
Diabetes Research Foundation. This is a standalone group that deals
ONLY with research --and it has amassed enough power in its field to
SET the agenda, free of NIH, although it marshals NIH as well. Note
that the Foundation defines itself as a "diabetes cure enterprise." If
an enterprise sets up its own lab that is all it can do --work with one
scientist or a couple in that one lab. It is narrowly focused --too
narrow to be successful, in my opinion. This isn't the right path. Or,
another way of saying it, is that it might be the wrong path. It is
putting all the eggs in one basket when you will likely only succeed
with a multi-pronged approach. Any such group would need to sustain and
continually generate and reinvent a strategic vision that is larger
than that, and fly above the points of data and individual projects to
direct a complex effort with a view of the dynamic whole.
>>From Juvenile Diabetes Research Foundation website
(http://www.jdrf.org/):
Founded by parents of children with juvenile diabetes, JDRF has always
focused on a single goal-accelerating research progress to cure
diabetes and its complications. To that end, our research management
process is unique-we're organized as a diabetes cure enterprise. We
take informed risks, continuously monitor the global diabetes research
landscape, and make research investments strategically, to ensure that
resources are effectively directed to research with the greatest impact
leading to a cure as soon as possible.
This unwavering dedication has led us to spend more money for diabetes
research than any other charitable organization-more than $800
million since our founding in 1970, including over $85 million in FY
2004 alone. More than 80 percent of JDRF's expenditures directly
support research and research-related education. In FY2004, JDRF
funded 500 centers, grants, and fellowships in 19 countries. In
addition, our advocacy has spurred government, especially the National
Institutes of Health, to increase its investment in type 1 diabetes
research to unprecedented levels.
Through our unique peer review and lay review program, JDRF funds the
most innovative, cutting-edge research worldwide. Our funding and
leadership are associated with most of the scientific breakthroughs in
type 1 research, including islet cell transplantation and stem cell
research. We pioneered in the creation of multidisciplinary programs
that bring together researchers from many institutions and such
disciplines as molecular biology and genetics, immunology,
transplantation, vascular biology, and stem cells. In a typical year,
we allocate more than 80 cents of every dollar of our expenditures
directly to research and research-related education.
Embedded in JDRF's mission are its three cure goals:
* Restoring normal blood sugar levels
* Preventing and reversing complications
* Preventing type 1 diabetes
Contained within these broad goals are specific research pathways to a
cure-treatments with the potential for having the greatest impact on
all people with type 1 diabetes. The pathways are defined by specific
scientific milestones to ensure our progress toward a cure.
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