Re: Chronic Lyme and cytokines???????????

a_weisman_at_yahoo.com
Date: 03/10/05 

Date: 10 Mar 2005 15:56:42 -0800

eugeneshapiroisapig wrote:
> I'm not going to knock steere on this article because I've not read
it.
> Looking at the abstract, it would take me several hours to make sure
I
> had a complete understanding before I felt free to criticize. But I
do
> agree with you about especially fatigue factors. The faitgue I have
> experienced in the past was what I would call "deadly fatigue". There
> were many days I could not get out of bed. I've slept for 28 hours at
a
> stretch. And it was sleep - not laying in bed - real sleep -
punctuated
> with violent nightmares and soaking sweats. And even then when I
woke
> up I didn't feel that hot. It really hacks me off when the fatigue is
> written off by some of the scientists. IMO, this is the single most
> debilitating symptom.

Okay I think you'rem describing a "constitutional" fatigue; while
greatcod is describing (I think) more of a myositis thing.

Maybe greatcod can clarify?

I do think that what you describe is very common in Lyme patients. I
would suspect the nightmares (night terrors) and sweats to be babesia.

Have you been worked up for and/or treated for babesia, bruce
(eugeneshapiroisapig).

Sometimes babesia can be refractory to initial treatment and require
several rounds of antimalarials combined with antibiotics (mepron
zithromax is a good combo).

And if you ask me a question I HATE from doctors, what are my top three
symptoms, I'd answer that the top ten are FATIGUE FATIGUE FATIGUE
FATIGUE FATIGUE FATIGUE FATIGUE FATIGUE FATIGUE AND FATIGUE along with
EASY FATIGUABILITY and then a LONG recovery period following exertions
of any sort (even a trip to the doctor) and an unpredictable period of
recovery. And non restorative sleep.

That symptom has been the MOST debilitating and disabling and most
refractory to treatment.

Of all the other symptoms I ever had including some severe neurological
ones, most have remitted over time with long term aggressive treatment
including several IV courses and LOTS of orals. My course of
improvement was slow and had ups and downs--remissions and relapses but
over the course of time (years) had an upward slope (with peaks and
valleys but after the first couple of years generally uphill).

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