CRIMINALS...Re: Great Lyme Article from CCTimes

They most certainly are CRIMINALS.

The scientific fraud, the about-faces,
the fraudulent testimony in legal cases
and Medical Board actions against LLMDs,
the CDC's Dressler/Steere standard,
the unreadable blots, the Munchausen's
accusations, Klempner's *numerous* fraudulent
statements, all the bad guys' fraudulent
statements to the press, The "some Psychiatric
disorder" statement of Steere's...

The list of crimes is *enormous,* and they
HAVE already been given to law enforcement.

Jones is perfectly justified, and naturally
fearless of retaliation for calling them
criminals, because they are, and this is
not slander or libel, but FACT.

And the Am Ped ID group is Shapiro.
An English Lit major, and major liar.
http://www.geocities.com/kmdickson0308/lyme-dilemma.html
http://www.geocities.com/kmdickson0308/1-4.txt

>>From the Life on Earth Series: 9/15/00
(Linked or enclosed)

SHAPIRO: What some people would have you believe is that there are two
different diseases.

SHAPIRO: Somehow, for that form of the disease, antibiotics are
effective. They do fine. But then there's some other form of the
disease which is, you can't put your hand around it. They don't have
objective findings of inflammation, which is the way bacteria cause
disease.

TOOMEY: What these patients do have are symptoms that doctors call
nonspecific. They span a broad spectrum. Emotional problems, as in the
case of Lisa's daughter; or fatigue, muscle pains, depression. Doctor
Shapiro helped write the Lyme treatment guidelines put out by the
Infectious Diseases Society of America. Guidelines that state even the
most advanced cases of infection can be eradicated with two months of
oral or intravenous antibiotics. But for the patients with these
ongoing, nonspecific symptoms, the maximum treatment didn't seem to
work.

SHAPIRO: They would have you believe that form of the disease, somehow
this is, the bacteria knows to act differently and it doesn't respond
to
antibiotics in this sense. It really doesn't make any sense.

SIGAL: Nobody has ever found a Borrelia Burgdorfer that is resistant to
the standard antibiotics that are used in the treatment of Lyme
Disease.
Which I think really
pokes a major league hole in the theory that what you've got is you
need
more antibiotics because you've made a super-bug.

Kathleen
> A 'criminal' approach
> Jones, 76, who has been in practice since 1965, calls the American
> Academy of Pediatrics' and Infectious Diseases Society of America's
> stance on how to diagnose and treat Lyme disease ''criminal,'' based on
> the thousands of cases he has seen of children who come to him with a
> range of conditions that clear up after long-term treatment with
> antibiotics - sometimes as long as a decade.

Kathleen

Greatcod wrote:
> Note the Klempner study reference, and the comments by Sugar.
> Donta is the exception on Cape Cod. Most cover their asses legally by
> doing nothing. But its a great article. and captures the
> patients experience. An Oh, Yeah, Dr. Jones use of the word "criminal".
> I am not alone.
>
> July 12, 2005
>
> Pervasive infection, elusive diagnosis
> By ROBIN LORD
> STAFF WRITER
> MASHPEE - Angie Binnall drove her three children to doctors around the
> state trying to figure out what was making them so sick. She finally
> found the answer from a physician right in her own backyard.
> Falmouth infectious disease specialist Dr. Samuel Donta last year
> explained what such specialists as endocrinologists,
> gastroenterologists and neurologists could not. He told her that her
> three children - Christopher, 19, Nicolas, 15, and Lynsey, 11 - were
> all suffering from chronic Lyme disease infections.
>
> Months later, Binnall herself was diagnosed with the disease, and Donta
> now suspects she may have had it for years and may have passed it on to
> her two youngest children during pregnancy.
>
> Rounding out the family is Binnall's husband, Alan, who was treated for
> possible Lyme disease from a tick bite on his neck in January 2004.
>
> The family members have suffered from numerous symptoms, ranging from
> extreme fatigue and joint pain to mental fog and skin disorders. Today,
> after long-term antibiotic treatment and thousands of dollars out of
> pocket, all but Nicolas are doing better, although there is still a
> long way to go, Binnall said.
>
>
> Difficult diagnosis
> Lyme disease is a bacterial infection transmitted by the tiny deer
> tick. The incidence of Lyme disease in Massachusetts is three times
> that of the rest of the country, and Cape Cod and the islands have the
> highest incidence in the state
>
> The Binnalls' experience highlights the difficulty many chronic Lyme
> disease patients experience in their quest to get the correct diagnosis
> and effective treatment. Many doctors are reluctant to identify Lyme as
> the cause of an illness that also mirrors conditions like chronic
> fatigue syndrome, Epstein-Barr virus and even multiple sclerosis and
> lupus.
>
> And many doctors also continue to follow the guidelines set up by the
> American Academy of Pediatrics and the Infectious Diseases Society of
> America, which discourage diagnosis of Lyme without a positive
> laboratory test, the characteristic bull's-eye rash or a tick bite
> followed by the classic Lyme flulike symptoms.
>
> The two associations also advise physicians not to prescribe long-term
> use of antibiotics for Lyme sufferers - advice that discourages
> insurance companies from covering the treatment.
>
> Doctors who are more liberal in their diagnosis of Lyme and in their
> treatment with long courses of antibiotics run the risk of insurance
> companies refusing to pay for the treatment and drugs.
>
> ''When places like the Infectious Diseases Society of America question
> the existence of chronic Lyme, the third-party payers hop on that,''
> Donta said.
>
> Donta, a retired Boston University professor of medicine, was a member
> of the society's committee that formulated the Lyme disease guidelines.
> He said he refused to sign the final draft of those guidelines.
>
>
> Sufferers' forum
> About 30 Lyme sufferers from across Massachusetts told of their
> difficulties getting treatment in this state despite that fact that
> some of the best medical institutions in the country are located in the
> Boston area. They spoke Friday in Ayer at a forum sponsored by State
> Rep. Peter Koutoujian, D-Waltham, chairman of the Joint Committee on
> Public Health. He told the group he was moved to hold the meeting after
> hearing from many constituents.
>
> Christopher Binnall could have been one of them. When he was going to
> Mashpee High School, where he was a musician, athlete and scholar, he
> came down with a ''horrendous meningitislike'' illness in September
> 2002. That, Angie Binnall said, is when her family's ''whole world fell
> apart.''
>
> Doctors were baffled and could not give her any explanation, other than
> a guess that it might be Epstein-Barr, which is characterized by
> fatigue and joint pain.
>
> A test for Lyme at the time came back negative, but Donta told her the
> test is imperfect and can return false results if done too early or too
> late in the Lyme infection.
>
> Unlike the test for HIV, the one for Lyme disease does not check the
> actual levels of the infection in your system. Instead, it looks for
> the presence of antibodies your body is producing to fight the
> infection.
>
> Christopher went from being a varsity football player to ''walking like
> an 80-year-old man,'' and having trouble getting out of bed, his mother
> said. And he kept getting worse. Doctors finally decided he was
> suffering from chronic fatigue syndrome, but Binnall was unconvinced.
>
> ''We went through the whole thing. Was it something in our house, in
> the air conditioning?'' Binnall said. ''I changed the kids' sheets
> every day.''
>
> Binnall went to Donta on the recommendation of an immunologist.
> Christopher saw him for the first time in May 2004 and, after an exam
> and interview and a very weak positive Lyme disease test, Donta began
> treating him with oral antibiotics, which he still takes.
>
> His symptoms improved enough for him to begin college last fall, and
> his mother said he is about 80 percent better today.
>
> After Christopher's diagnosis, Binnall began to look more closely at
> her other two children's medical issues. Nicolas, the 11-year-old, was
> born prematurely after a difficult pregnancy and has battled asthma and
> allergies all his life, she said. Since 2002, he has been debilitated
> by problems, including a severe sleep disorder.
>
> Lynsey started showing signs of illness in fall of 2003. Her symptoms
> were similar to Christopher's, including the fatigue, joint pains and
> inability to focus mentally.
>
>
> In utero transmission
> New Haven, Conn., pediatrician Dr. Charles Ray Jones, who treats more
> than 7,500 children with Lyme disease from around the world, including
> the Binnall children, said research has shown that the Lyme spirochete
> can be passed from mother to child in utero.
>
> Donta prescribed long-term oral antibiotics for Nicolas and Lynsey.
> Lynsey has improved, but Nicolas has not, Binnall said.
>
> Binnall has learned there is controversy even within the medical
> community over whether there is such a thing as chronic Lyme disease.
> Doctors disagree whether co-infections from other tick-borne illnesses
> like babesiosis, ehrlichiosis and bartonella can play a part in what
> has up until now been known as Lyme disease alone.
>
> Donta is not convinced that other tick infections can cause chronic
> conditions. So, in addition to Donta, Binnall now takes her children to
> Dr. Jones in New Haven. During an interview last week, he said about 60
> percent of the children he sees have co-infections with Lyme.
>
> Jones said he finds it amazing that more than two decades after the
> Lyme spirochete was identified and the Lyme infection process was
> finally understood, there is still so much controversy over how it is
> diagnosed and treated.
>
> ''It all boils down to a concept of Lyme that doesn't fit with what it
> actually is,'' he said. ''A lot of doctors don't think independently
> and give (patients) three weeks' standard treatment, or think they have
> other diseases.''
>
>
> A 'criminal' approach
> Jones, 76, who has been in practice since 1965, calls the American
> Academy of Pediatrics' and Infectious Diseases Society of America's
> stance on how to diagnose and treat Lyme disease ''criminal,'' based on
> the thousands of cases he has seen of children who come to him with a
> range of conditions that clear up after long-term treatment with
> antibiotics - sometimes as long as a decade.
>
> He told of an 8-year-old boy from Hawaii who first came to him at age 5
> as a weak child who did not speak and appeared to be mentally retarded
> or autistic. Today, after three years of antibiotic therapy, the child
> talks fluently and is ''extremely bright,'' he said.
>
> Jones contends that long-term antibiotics tailored to the person (there
> are more than 300 strains of the Lyme spirochete) is necessary to
> finally eradicate the stubborn bacteria if they have embedded
> themselves into the cells of the body.
>
> Among those who fall on the side of the more conservative treatment for
> Lyme disease is Cape Cod Hospital infectious disease specialist Dr.
> Alan Sugar. He said there is no scientific evidence that an active Lyme
> infection is responsible for the chronic complaints some doctors
> ascribe to long-term Lyme. He said there is also no evidence the Lyme
> bacteria can ''hide'' in the tissues of an infected person.
>
> Sugar said the subject has ''turned into more of a religion than a
> medical issue'' for some, and he said to treat someone for months and
> years ''makes very little sense.''
>
>
> Circumstantial evidence
> But Donta said the medical research community has not done the right
> kind or amount of scientific testing to solve the question of whether
> chronic Lyme exists and is cured by long-term antibiotics. He said he
> and other doctors who diagnose and treat chronic Lyme have much
> circumstantial evidence that gives them credibility.
>
> ''The proof is in the pudding,'' he said. ''Patients are improving''
> with long-term antibiotic treatment.
>
> A National Institutes of Health-funded study done by Dr. Mark Klempner
> of Boston University School of Medicine and published in the New
> England Journal of Medicine last year showed no difference between
> long-term antibiotic therapy and placebos for patients with long-term
> Lyme. But Donta claims the treatment trial period was too short and the
> wrong type of antibiotic was used..
>
>
>
>
> State health department infectious disease expert Dr. Alfred DeMoria
> said it is not his department's role to take a stance on the diagnosis
> and treatment of Lyme disease. He said clearly there are people with
> late complications of Lyme, but the controversy arises over who does
> and who doesn't have them.
>
> ''From a public health standpoint, arguing these cases doesn't promote
> the public health focus of preventing Lyme disease,'' he said. ''The
> more we do to prevent it in the first place, the better off we'll be.''
>
> Robin Lord can be reached at rlord@capecodonline

.

Quantcast