the real issue in the Jones case
- From: pmerv@xxxxxxxxxxxx
- Date: 29 Nov 2005 15:35:11 -0800
Why should we put up with the generally accepted standard of care? The
IDSA standard of care basically constitutes, as Ken Liegner has
eloquently said, medical neglect.
* You were bitten by a tick? Here, have 200mg. of doxycycline.
There's no proof it works but it's cheap and it will get you off my
back.
* You think you have Lyme? Most people who think they do, don't
really. You have chronic fatigue, fibromyalgia, multiple sclerosis,
mental illness, etc.
* Your child has Lyme? 2 weeks of antibiotics will cure him.
* You think your child still has Lyme after treatment? Maybe we
should check you for Munchausen's by proxy.
* You have a positive test? It either doesn't meet the CDC
criteria, it's a false positive, or a positive test doesn't prove
active disease.
* You need an LLMD appointment after getting nowhere with 10 other
doctors? You either have to travel several hours, wait several months
for an appointment, or the practice is closed to new patients because
there aren't enough LLMDs.
For people with Lyme disease the IDSA standard of care says, "Heads I
win, tails you lose." And then they go after LLMDs and Lyme labs,
trying to reduce the already pathetically limited resources. Why should
we put up with this? When is the Lyme community going to say, "Enough!"?
.
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