Why they call it LymeNUT--Ch. 707
- From: "the 3rd Man" <sir_der05@xxxxxxxxx>
- Date: 23 Oct 2006 11:14:52 -0700
Now the LymeNUTs are actually posting messages threatening acts of
terrorism against the nation's blood supply unless they get their
way...unless the "CDC" (sic) guidelines are removed.
(See what comes of agitating and demagoguery)?
What is truly frightening is that some seen to agree with this
INSANITY.
AbsoLOUtely out of conTROLL.
Irresponsible in the extreme.
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We should all be cured by then.That is what the aids patients had to
threaten,in the early 80's.Now it is time to fight or die a slow
painful death.It has come to the end,unless we do something drastic,we
are beaten for good.
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Posts: 160 | From: PA | Registered: Jul 2005 | IP: Logged
quote:
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Originally posted by 8man12:
We should all be cured by then.That is what the aids patients had to
threaten,in the early 80's.Now it is time to fight or die a slow
painful death.It has come to the end,unless we do something drastic,we
are beaten for good.
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That is what I'm talking about!!!! Brilliant!!!
"Dear CDC,
According to the lyme disease testing protocols for which you give
guidance on your website, and which are being quoted and followed by my
doctor, I'm told that I DO NOT have lyme disease. I did however test
positive on band 39 on a Western Blot test. Due to the fact that based
on your published criteria my doctor is quite sure I DO NOT have Lyme
disease, I will immediately begin donating blood as often as possible,
as I am aware that the Red Cross is in need of this. Thank you for your
concern."
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Posts: 252 | From: nevada | Registered: Sep 2005 | IP: Logged
Michelle M
Frequent Contributor
posted 23 October, 2006 02:15 AM
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I'm going to put in my two cents.
Let them sweat a little.
I was reminded of this the other day while trying to buy a health
insurance policy.
The very company that's been claiming I don't need any more medicine
because I'm "cured" is somehow now legally allowed to refuse me
insurance because I'm apparently not cured??? WTF?
The bast@rds ought to have to pick which way they're gonna have it.
When I read about borrelia-infected mouse models receiving supposedly
curative antibiotic treatment then donating blood to noninfected mice,
who go on to develop full-blown lyme, I should think mainstream
medicine would sort of get a clue and get their heads out of their
collective a$$es.
Maybe we should stage a walk in at the blood banks. Proclaim a day
certain when all lyme patients converge. Let them wonder.
While I would never condone harm to another individual, I'm with
8Man12, and I think it's time to fight.
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Posts: 1410 | From: Northern California | Registered: Apr 2005 | IP:
Logged
Frequent Contributor
posted 23 October, 2006 02:27 AM
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Holy Platlet, Batman!
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Posts: 409 | From: AZ | Registered: Feb 2006 | IP: Logged
Frequent Contributor
posted 23 October, 2006 04:05 AM
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I'm a nurse said.
About blood donations:
I wonder whom will be held liable or accountable when patients known to
be infected donate blood and then infect others. People with AIDS that
knowingly infect others end up in jail.
My thoery,is that 99% of people on this site has had enough
antibiotics,to be lyme free according to there guidelines.So if there
so sure it shouldn't be no crime.
And i thought all these problems i got,that came after a big rash
across my back,from a tick bite on my lower back,were from lyme
disease.I guess i'm just nuts then.I'm sure thats what the doctors are
going to tell me when they cut off the antibiotics.And im sick as a
dog,but look fine.
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Posts: 160 | From: PA | Registered: Jul 2005 | IP: Logged
Frequent Contributor
posted 23 October, 2006 07:02 AM
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We could all show up at Red Cross -stating we have lyme- have it all on
the up an up-then when Red Cross says "no thanks" which they did in my
case- we could whip out the CDC guidelines to prove we were cured and
there was no need to worry.
Wouldn't CDC have to answer to Red Cross-how/where does Red Cross get
it's information about blood safety and Lyme-sure can't be from the
CDC. What guidlelines do they adhere to?
The Red Cross is on top of things. I remember 30 years ago-soon after I
had been to the doctor's, feeling lethargic, swollen lymph nodes,
achy-tested for everything under the sun but Lyme disease-but put me on
tetracycline- I felt so much worse after a week of antibioitc and
developed a rash-he took me off the antibioitc.
wish I knew then what I know now. Anyway he finally removed a lymph
node to test it-couldn't find anything-wasn't thinking lyme &
Co.-declared it hpyerplastic-and maybe my lymph nodes just seemed
enlarged because I was so thin.
To come to the end of this long story, which only I find interesting,
but it has relevance,next time I went to give blood and I told the Red
Cross about my lymph nodes-they refused to take my blood and told me to
be tested for Aids-which I was-and it was negative.
Fast forward 30 years, I go to give blood tell them I HAD Lyme (over a
year ago-and was treated according to CDC guidlines)-this was before I
tested positive a second time-and they still refused blood because of
it. So they must know more than the CDC about Lyme.
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Beam Me Up,Scottie !
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Posts: 185 | From: Under Cover in Baltimore | Registered: Sep 2006 |
IP: Logged
Frequent Contributor
posted 23 October, 2006 07:47 AM
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I donated blood at the local university-hospital a few years ago. I
told them I had had LD in 92, but they still let me donate. Wish I had
known what I know now... being ill all over again because I wasn't
properly treated back then.. how many people have gotten my blood!?
Ouch!
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Posts: 85 | From: Norway | Registered: Jan 2006 | IP: Logged
Frequent Contributor
posted 23 October, 2006 08:33 AM
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Irresponsible.
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Posts: 1257 | Registered: Feb 2004 | IP: Logged
posted 23 October, 2006 08:33 AM
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OR
Why not ask one of the Experts, for eg the Worm, to do a blood
transfusion from one of the "cured" patients to prove their theory?
Oh yeah - he would run an Elisa as proof!
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Posts: 20 | From: China | Registered: Aug 2006 | IP: Logged
Frequent Contributor
posted 23 October, 2006 09:37 AM
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quote:
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Irresponsible.
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I don't think anyone's suggesting we actually put our blood into the
national blood supply.
However, I think simply showing up en masse and forcing them to
acknowledge the idiocy of it all might be a good idea.
Sometimes civil disobedience for a higher purpose is the most
'responsible' thing you can do.
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Posts: 1410 | From: Northern California | Registered: Apr 2005 | IP:
Logged
Frequent Contributor
09:42 AM
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Do unto others...
You wouldn't REALLY give blood, right?
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Posts: 4806 | From: Sunshine State | Registered: Mar 2001 | IP:
Logged
Frequent Contributor
posted 23 October, 2006 10:01 AM
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***The very company that's been claiming I don't need any more medicine
because I'm "cured" is somehow now legally allowed to refuse me
insurance because I'm apparently not cured???****
Argghh! Can you afford to get a medical attorney on that? Or Patient's
Rights?
Or Guido, the 800 lb. gorilla?
As intriguing as the idea of saying we're going to give *tainted* blood
is---- I somehow think that it might float back to the group
threatening that.
AIDS patients, back then, had less to lose--- since they had a death
sentence dealt them already.
Just my pessimistic view.
But it's STILL a great idea.
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Posts: 6916 | From: Santa Rosa CA | Registered: Mar 2001 | IP: Logged
posted 23 October, 2006 10:19 AM
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I LOVE IT!
Initially, my first thought was that if we all threaten to go give
blood since we don't have Lyme according to the CDC criteria, then
all that would happen is that the Red Cross, Bonifils, and other blood
collectors would be FORCED to start testing for Lyme.
Then I figured that the end result would be that the cost of blood
would go sky high for the poor folks who need it. Because the only
reason the Red Cross and others don't test for Lyme is because it is
too costly, and of course, the chances are so slim of finding it
(hah!).
BUT.... WHAT IF all this were to happen - that the Red Cross, etc.
would have to start screening blood for Lyme? Even with the crappy
tests out there, they would probably be shocked at how much Lyme is
going through the blood banks.
Surely that should start some kind of fire burning that the IDSA, the
CDC, ad nauseum, are going to have to put out.
And we would have done it by following THEIR rules!
I just love it!
posted 23 October, 2006 10:33 AM
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Truth said in righteous exuberance:
****Even with the crappy tests out there, they would probably be
shocked at how much Lyme is going through the blood banks.****
Sounds good, but I'm going to play Devil's Advocate here:
Wouldn't that still result in higher prices for those that need
(receive) the blood.
And Bb isn't found in the blood easily, esp. with crappy tests.
And wouldn't the blood banks/Red Cross etc find some way to negate
their findings (as in IDSA-style sleaze statements), even if they DID
find enough infected blood.
Feel free to shoot me down.
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Posts: 6916 | From: Santa Rosa CA | Registered: Mar 2001 | IP: Logged
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quote:
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Originally posted by
Do unto others...
You wouldn't REALLY give blood, right?
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And chance infecting some innocent person with this??? No way.
Though I acknowledge I would love to make the gift of a nice
transfusion of Babesia WA1 to a few key IDSA "researchers" -- on a
purely scientific basis!! -- just to give them first-hand understanding
of how easily treatable it is with a mere seven days of antimalarials.
But sure -- let them find us lined up at the doors and be forced to
acknowledge the sheer lunacy of the 'cured' vs. no way we want your
blood even gift-wrapped lunacy.
quote:
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[Q] Truth said in righteous exuberance:
****Even with the crappy tests out there, they would probably be
shocked at how much Lyme is going through the blood banks.****
Sounds good, but I'm going to play Devil's Advocate here:
Wouldn't that still result in higher prices for those that need
(receive) the blood.
And Bb isn't found in the blood easily, esp. with crappy tests.
And wouldn't the blood banks/Red Cross etc find some way to negate
their findings (as in IDSA-style sleaze statements), even if they DID
find enough infected blood.
Feel free to shoot me down. [/Q]
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Well, maybe it's time they divert a coupla million offa Steere's grants
and give it to the Red Cross instead to develop better screening tests.
Though I seriously suspect the Red Cross doesn't wanna know. Ya know?
Even if they ever DO test, they'll continue to use crappy testing. It's
like the difference between Quest and IGeneX.
As Cave forecast, "We don't see any problems here!!!"
Can you imagine IGeneX-level testing on all the blood that comes
through the blood bank in a tick-endemic area?
Yikes. It gives me the shivers.
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Posts: 1410 | From: Northern California | Registered: Apr 2005 | IP:
Logged
posted 23 October, 2006 10:59 AM
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quote:
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OR
Why not ask one of the Experts, for eg the Worm, to do a blood
transfusion from one of the "cured" patients to prove their theory?
Oh yeah - he would run an Elisa as proof!
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WORKS FOR ME!!!!
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Do not take anything I say as medical advice. I am not a doctor, but I
DID stay at a Holiday Inn Express!
oops!
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posted 23 October, 2006 10:59 AM
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quote:
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Feel free to shoot me down.
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I wish I could, ( ), but I can't.
Yes, it would raise the cost of blood, but wouldn't that create a whole
other, unrelated-to-us group that starts complaining about a
Lyme-related issue?
If people are hit in the pocketbook AND made aware of the danger of
Lyme Disease at the same time, it is a good thing.
Let's face it - the Red Cross, etc. SHOULD be checking for Lyme
anyway!!! We all know that - they just don't know it yet, and neither
do their customers.
And when you consider the sheer volume of blood being collected, I
still think even the crappy tests are going to reveal a great deal.
Think of all the UNDIAGNOSED, unaware people out there with Lyme who
are giving blood. We are the lucky few who KNOW we have it.
Gotta get off here for awhile.....
posted 23 October, 2006 11:55 AM
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Trust me i wouldnt give my blood to my worste enemy.But these guidlines
are already showing up on tv
im not stateing this to make you mad.But if your neighbors watched that
show,and they think you are sick.Or even family members.What does it
look like.Have some of us been just fakeing for years.I sure wish i
could wake up and all this missery would be gone pain,etc.
Now the poor people who are just finding out they have chronic lyme are
really going to be in trouble.I sure remember how it was when i was
seriously ill,and went to the doctors and couldnt get help,because i
looked fine.
We have nothing.We have the Columbia study which used a SPECT
scan.Which will never be recognised as a test or tool for telling on
going lyme infection.All there is are a few journal articles saying
lyme can be chronic,but since they are from foreign countries,or not
done by th IDSA,they are going to listen to them.
My sister called me at 8 this morning a wanted to know if i wanted to
go to walmart.I told her mornings are terrible.She said "didnt you
watch tv last night,you arent sick anymore".She knows the truth,but
medicle ducks and there staff will just take us to be nuts now.
I dont know but this is far the worst blow,we as lyme patients have
been delt.Trustme it will be just weeks before insurance companies will
be stopping the antibiotics.
But even then i still think of the newbies,lyme doctors now have
pressure on them.Will they keep practiceing.One has already quit,it
wont be long before others do.
Not meant to make anyone mad.But i've seen this downhill spiral since
Klempners first study which suggested lyme was worse than chronic heart
failure.Now he works for the government and it can be cured in a month.
In my book it is time for war.We been beat as low as we can go.We cant
let it get any worse.I already had an email from a friend in NY. who
couldnt get biaxin,2 months in a row,here insurance just changed the
rule Friday.If i pass away for this disease slowly and painfully as ive
seen two people i know,i at least want to die with dignanty.
And it sure would be nice to have an illnes that is recognised.It would
make life at doctors visits alot easier.
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Posts: 160 | From: PA | Registered: Jul 2005 | IP: Logged
Last week there was a big blood drive at the high school.Get those vol.
hours done,plus make all a's,plus don't look crossed eye at your
homeroom monitor.
I saw kids giving blood and know they have been in contact w/
ticks.They have no clue.Oh, that tick bite from the summer...no big
deal....but I am feeling a little tired????Must be the Mono catching
back up w/ me.
What do you do..
Giving blood to get their Volunteer hours complete because NCLB says it
is mandatory for graduating.Hey, many of these kids don't do it
thinking of lives to be saved....it is a quick way to get many hours
for your mandatory vol.hours.
There is NO education about this at all,no talk of tick diseases,prior
infections.
I know one bite could not display itself immediately for lyme or a
co-infection .Down the road is another story.All of us had
rashes,right?
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Posts: 970 | Registered: Apr 2003 | IP: Logged
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I like this idea very much.
I agree with (again) that civil disobedience is needed.
I am concerned we dont have the numbers of people to make this
effective though. If we had hundreds of folks at EACH blood drive on a
certain day across the nation. and had good organizers and contacted
the press beforehand, then MAYBE.
And at this point maybe is worth it.
But I still think our numbers are too small to make any impact.
please prove me wrong.
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Posts: 1472 | From: New Mexico | Registered: Sep 2001 | IP: Logged
posted 23 October, 2006 01:30 PM
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I think we need to tell the CDC,unless we get some time to prove
chronic lyme exists,and the IDSA,guidlines are put on hold.And are
doctors are not pressured,and if not after a certain date we will all
just go at different times,to to our local blood drives we dont have to
group up,we dont have to drive far.For once we would have them by the
ba$$s.If we all showed up to give blood at once they would probably
have the national guard there ready to shoot us.
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Posts: 160 | From: PA | Registered: Jul 2005 | IP: Logged
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