New here questions on lyme and other
- From: Needsomeinput <needrealhelp61@xxxxxxxxx>
- Date: Mon, 18 Feb 2008 16:57:45 -0800 (PST)
I got sick about a year and half ago, literally from one week to the
next, and since my symptoms were so bizarre (neurological) I thought I
it could've been lyme. I used to live in CT so I figured it was
possible (had just recently move to the west coast). I joined the
Lymenet but quit after realizing it was just sort of a cult, you
couldn't even bring scientific facts to the discussion, otherwise you
were attacked or your posts were deleted. I have followed some of the
threads in this group and even though is filled with a lot of juvenile
behavior, I've also noted that there are smart people contributing.
I have a background in science and I knew that a lot that was said
about elisa , wb, IFA was bogus and the specialized labs (at lymenet).
Even though I decided to try antibiotics just in case it was lyme or
other bacteria causing immune dysfunction. I was on several orals (for
about 2 months) but went on rocephin and discontinued it (myself)
after a month of no effects.
I recovered probably up to 90% after probably 4 or 5 months on
different supplements and rest ( I was bed bound for a while and had
to be taken care for).
Anyway, I was found to have babesia through IGenex but I'm not sure if
I trust them (I was treated for that as well). The were using sort of
a novel method through inoculation of hamsters (I can give more
details).
My spinal tap of just a few weeks age showed elevated proteins (all
the Dr. didn't have the presence of mind of electrophoresis) also a
very abnormal % of the WBC differential. But based on my symptoms and
history no Dr. has been able to put a diagnosis together. As an
experimental treatment the Neuro wants to try IVIG (is however very
expensive)
Can you guys comment on that? any help is appreciated
thanks
.
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