Re: Complications of Coinfection with Babesia and Lyme Disease After Splenectomy. IVIG


Best thing I've seen is aggresive antibiotic treatment while the
patient is showing a positive response. And the passage of time. I
tend to think that certain coinfections, definitely babesia and maybe
these "bartonella like organisms" and who knows, maybe something else
that has been missed thus far, is a big part of the puzzle.


Well, I totally agree that the antibiotics are key...cause you have to
kill the BB (or whichever one you have)...and that ticks are just
teeming with all kinds of who-knows-what kinds of co-infections you
can get. These need to be treated when present, of course. But it is
exactly that 'piece of the puzzle' that we don't know about that gets
me. There is really no research on what that missing piece could be,
at least of which I am aware yet. I think that if either IDSA or ILADS
were right, we wouldn't HAVE a controversy.

Some people do better than others, Maybe host factors?


Do you mean in the disease or in treatment? Overall, with how many
years I have been dealing with this and how many possible infections I
have come in contact with, I myself have 'done well'. Not to say I
didn't have a few really bad years. But, I'm still alive and I hold a
job. Since starting orals, which I have done on and off (mostly on)
for months at a time for almost a year, I find some things are better,
some still progress. It's the things that continue to progress that
concern me, obviously. Mostly the neuropathy and the arthritis. This
disease is more MS-like than it was even just a few years ago. Its
been a very cold, wet winter so I guess that could be why the
arthritis that has been there is bothering me as much as it is. But I
don't think neuropathy and weakness can be explained away by the
weather...I just started the Plaquenil again, hopefully that will help
some of the arthritis stuff. I just feel like there is something
missing. I am not as literate as a lot of you in this, but with the
information I do know, it doesn't all add up. There are too many
contradictions...



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