Re: IV ABX Study for Psychosis

Anyway...saw them with Bruce Hornsby at the Garden in **I think** 1991.
Its kinda hazy now as to when that took place.

Saw them at the garden around then too. And at nassau.And a bunch of
places.

Maybe I saw you there! I was the short one, you know, in the crowd,
listening!

OK...chances are even if I did I wouldn't remember. One of my friends
went to see them in Nassau and disappeared and we didn't see her for
days. She came back, after a weekend in the Hamptons with some guy she
met at the dead show, and all she had to say was... "Look! He signed my
shoe!"

Ah...good times.

I wonder why?

I wonder.

Even if I was already infected, probably had nothing to do with Lyme
disease, I think I remember that much. Lol.


Sweet. Brunette and Petite. Sweeeeeeeeeeeeeeeeeeeeeet.


Well at least I have a shot.


Reserving final judgment ;)

I'm not as cute as I used to be, but not hideous either. Weathered a
bit...but with a little touch up and a little paint...

Well he's a psychiatrist not a neurologist so I don't think IVIG is
likely to be considered for the psychiatric arsenal.


You are probably right...but then again, why not? Since when are
antibiotics the normal course for psych disturbances? You have
syphilis or you have Lyme and get antibiotics for neuro involvement...
but not many shrinks are handing out the penicillin as a matter of
course. I'd like to see IF it would make a difference for the
neurological stuff. I think he should be thinking outside the box...not
just doing the same thing over and over expecting different results...
after all...that's insane. ;)

Well you can get rocephin (although perhaps not the home care, line
care and supplies) cheap.

Our first day I would buy you IV cocktails!


lol. Indeed. Can we have wheelchair races and cane jousts, too? Or, is
that moving too fast?

Not to happy with the fallon studies anyway. They and he are being
USED to discredit "long term iv" treatment without ever giving it a
fair test.

It depends on who is interpreting. Some people think it means a few
months is not enough. Some people say it is because he didn't do orals
after. I'm not sure. I think, though, that it proves the disease is
way tougher to treat than meets the eye.


Did you see that long list of article abstracts? Look them over. Shows
how crappy the ELISA is.

I went back and looked again. I think I will take some of those to him
when I go next. I still go for some things. He's very stubborn in his
beliefs about a lot of things, including Lyme. I mean, I gotta hand it
to him, he knows its more than 14-28 days in late disease. And he does
know how bad it can get. I was told "You should be dead or drooling in
a wheelchair"...how's that for bedside manner? But he truly thinks you
can use the ELISA to measure the disease, which was the first clue to
me to go online and find another doctor, because even I knew that you
don't treat to a titer with Lyme from when my dog had it. He kept
saying..."We should see this going down, and its not...it went up...hmmm..."
but then didn't change my meds. I went in asking for something else
(other than doxy) because of the awful burns. I'm 1/4 irish and have
fair skin to begin with. I would burn within the time it took to take
the dog out to pee. My knuckles were peeling just from that. I
couldn't go out without long sleeves, a hat, jeans, shoes, and gloves
in the middle of the summer. He wouldn't change it. Told me to use
sunscreen. Sunscreen doesn't protect you from those kinds of burns. I
went to the pharmacist I use and he gave me some special compounded
stuff with zinc oxide in it to help protect me. Getting him to really
listen sometimes is difficult, yet he is one of the better ones out
here. I have been to some real idiots, not kidding!

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