Re: IV ABX Study for Psychosis

On Feb 21, 2:56�pm, itsybitsy...@xxxxxxxxx wrote:
Anyway...saw them with Bruce Hornsby at the Garden in **I think** 1991..
Its kinda hazy now as to when that took place.

Saw them at the garden around then �too. And at nassau.And a bunch of
places.

Maybe I saw you there! I was the short one, you know, in the crowd,
listening!

Listening? Were you dancing? Did you have an indian print skirt on?
Sleeveless little something top?

OK...chances are even if I did I wouldn't remember. One of my friends
went to see them in Nassau and disappeared and we didn't see her for
days. She came back, after a weekend in the Hamptons with some guy she
met at the dead show, and all she had to say was... "Look! He signed my
shoe!"

I think I signed someone's shoe in the hamptons after a dead
show.... ;-)

Ah...good times.

Yes. Sad that jerry died.

Very sad.

He was one of the greatest guitar players ever. Love all his stuff,
the JGband, jerry acoustic, jerry electric, jerry playing folk music
with david grisman and the New Riders etc.

I've seen the Dead in the recent few years when they've come around.
Phil Lesh is great when he plays. Saw the Dead with Warren Haynes
playing leads that was great too.

Not as crazy about bobby weir shows.

I wonder why?

I wonder.

Even if I was already infected, probably had nothing to do with Lyme
disease, I think I remember that much. Lol.

LOL I think I get it.


Sweet. Brunette and Petite. Sweeeeeeeeeeeeeeeeeeeeeet.

Well at least I have a shot.

Reserving final judgment �;)

Fair enough.


I'm not as cute as I used to be, but not hideous either. Weathered a
bit...but with a little touch up and a little paint...

Well we are all a few years older. I'm not any more mature though
still young at heart and stupid too.

Attractive qualities huh?

Well he's a psychiatrist not a neurologist so I don't think IVIG is
likely to be considered for the psychiatric arsenal.

You are probably right...but then again, why not? Since when are
antibiotics the normal course for psych disturbances?

Increasingly many psychiatrists have found infectious disease (not
just lyme) as a cause of psychiatric problems. Psychiatrists are
medical doctors with a speciality in psychiatry. In order to make
accurate diagnoses (or diagnosi) they are supposed to consider and
rule out physical causes. If they don't rule them out they are
supposed to consider their role.

For example, one could have depression. Or it could be secondary to a
chronic illness. Or primarily caused by an illness.

Psychiatric manifestations might indicate a primarly physical problem
(brain tumor for example).

You have
syphilis or you have Lyme and get antibiotics for neuro involvement...
but not many shrinks are handing out the penicillin as a matter of
course. I'd like to see IF it would make a difference for the
neurological stuff. I think he should be thinking outside the box...not
just doing the same thing over and over expecting different results...
after all...that's insane. ;)

I'm just saying that IVIG generally is used to treat non psychiatric
symptoms that are primarily neurologic so a neurologist is more likely
to try it in a trial for peripheral neuropathy from lyme than fallon.

Well you can get rocephin (although perhaps not the home care, line
care and supplies) cheap.

Our first day I would buy you IV cocktails!

lol. Indeed. Can we have wheelchair races and cane jousts, too? Or, is
that moving too fast?

I'm not in a wheelchair and don't use a cane. And certainly not on the
first date.


Not to happy with the fallon studies anyway. They and he are being
USED to discredit "long term iv" treatment without ever giving it a
fair test.

It depends on who is interpreting. Some people think it means a few
months is not enough. Some people say it is because he didn't do orals
after. I'm not sure. I think, though, that it proves the disease is
way tougher to treat than meets the eye.

My point is that the tests of "long term treatment" have not ever
evaluated long term treatment a la llmds,


Did you see that long list of article abstracts? Look them over. Shows
how crappy the ELISA is.

I went back and looked again. I think I will take some of those to him
when I go next. I still go for some things. He's very stubborn in his
beliefs about a lot of things, including Lyme. I mean, I gotta hand it
to him, he knows its more than 14-28 days in late disease. And he does
know how bad it can get. I was told "You should be dead or drooling in
a wheelchair"...how's that for bedside manner? But he truly thinks you
can use the ELISA to measure the disease, which was the first clue to
me to go online and find another doctor, because even I knew that you
don't treat to a titer with Lyme from when my dog had it. He kept
saying..."We should see this going down, and its not...it went up...hmmm...."
but then didn't change my meds. I went in asking for something else
(other than doxy) because of the awful burns. I'm 1/4 irish and have
fair skin to begin with. I would burn within the time it took to take
the dog out to pee. My knuckles were peeling just from that. I
couldn't go out without long sleeves, a hat, jeans, shoes, and gloves
in the middle of the summer. He wouldn't change it. Told me to use
sunscreen. Sunscreen doesn't protect you from those kinds of burns. I
went to the pharmacist I use and he gave me some special compounded
stuff with zinc oxide in it to help protect me. Getting him to really
listen sometimes is difficult, yet he is one of the better ones out
here. I have been to some real idiots, not kidding!

Yes doxy burns are bad and common. Lots of drugs say they can cause
photosensitivity but they really mean it with doxy. As I said it makes
a difference doxy vs doryx pills vs capsules etc.

Wondering who your doctor is? Doesn't sound like that nut from colmar
pa.

Guessing you're not seeing the one in hermitage pa either.

Is your doc on the llmd lists? Or someone who is open minded but
doesn't treat a lot of lyme?

You do NOT have to reveal anything you don't want to. I understand.



.