Patients or parents of patients willing to talk about cystic fibrosis?



Hello all,

I hope you are having a wonderful week. I was hoping to get in touch
with patients or parents of patients dealing with cystic fibrosis. I
work for a public relations firm and one of my clients is in the
cystic fibrosis and chronic pancreatitis space.

We work heavily in patient advocacy and disease awareness and we are
looking to speak to a few individuals on the phone (or if they are
based in NYC -- in person) about their perspective on cystic fibrosis.
This could include education, disease management, medication issues,
etc.

If you have time during the next week or early next week to answer a
few survey questions, please e-mail me at avillani@xxxxxxxxxxxxxxxx
with.

We appreciate all your help and any input you could provide about CF.

Please enjoy the rest of your week.

Best,
Andrew

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