Re: how to educate your urologist/ref to Shoskes
From: Gutbuster (dont-stare_at_me.private.parts)
Date: 12/13/04
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Date: Mon, 13 Dec 2004 22:56:36 +1100
"davemaschine" <dhs@neosoft.com> wrote in message
news:1102879895.844528.224820@c13g2000cwb.googlegroups.com...
>I have not posted here in really quite a while, but though doing much
> better than well over a year ago, feel I am really on to something.
>
Snipped as you can tell.
I grow tired and weary about the complaint. I do have CP for sure. Mine is
bacterial. When it gets so bad it feels like someone has a razor blade on my
left side slowly slicing inside of me, I resort to strong antibiotics but
unless that happens, strong Saw Palmetto.
Nothing else do I take for the relief of this.
I also have a raft of other problems, one of which is IBS. For that problem,
apparently I am to have no caffeine at all but I also have severe and
untreatable sleep apnea and without a strong caffeine dose, I cant work. The
added benefit of doing the opposite to medical advice so far as CP and IBS
is concerned is that I not only pee more freely, I also crap easier.
So, I can work maybe 4 or so hours a day, can do my business without a
problem and all due to doing the opposite to what doctors tell me.
I find there is absolutely NO use once diagnosed, in going back to a doctor
for help. If there is some new breakthrough, you'll find it on Internet
before your doctor knows about it unless your doctor was the one who
invented the breakthrough. The doctors don't care because they cant help you
and they tend to look at you and treat you like a hypochondriac even though
they are the ones who first thought you had CP before being diagnosed.
So, do NOT go to a doctor once diagnosed, drink a lot of caffeine and pee
and crap better. Take Saw Palmetto in strong doses until the pain gets too
much then go to the doctor for your strong antibiotics. Don't take too many
pain killers as they tear your insides up and like me you eventually start
showing blood in urine or crap or both and by stopping taking the pain
killers, about a week later it is cleared up. Sit on chairs like camp chairs
with a strip of stuff like calico as the seat so the pressure on your arse
isn't as bad as it could be. Don't sit down in any one session for more than
20 minutes without getting up and just standing there if you are watching
TV, for about 5 minutes before you sit down again.
None of that will cure you but like palliative care, it is just management
of the problem. It is all you can do - and stay away from doctors. You don't
work as well if you keep getting the vibe from them that you are a lazy good
for nothing whinger who should be in a mental asylum undergoing treatment
for psychiatric disorders even though you DO have health problems. If you
feel down, you feel worse. I say "don't give them the satisfaction"!
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