Re: Prostatitis and Rectal Pain
- From: swantzswanson@xxxxxxxxxxx
- Date: 4 Apr 2005 10:31:01 -0700
try 20 mg of amytriptyline at bedtime. you probably need some
oxycodone
also.
swantzswanson
Pete wrote:
> Hi everyone,
>
> I was really into this group in 1997/1998 (when I suffered real bad
for
> months), and my prostatitis has come back several times since. I am
57
> years old, medically literate, and have other health problems,
including an
> unknown cause T-4 cell deficiency (HIV negative), which could be
related to
> my prostate problems (in my opinion). I had chest and
abdominal/pelvic
> scans last fall as well as MRCP and abdominal ultrasound. Will be
having my
> fourth EGD since last fall for stomach related issues. My last
colonoscopy
> was July/02. I also have sarcoidosis with some enlarged lymph nodes
in
> body.
>
> I have had my recent CP flare-up on and off since last fall, when my
proton
> pump inhibitors stopped working and I was having serious
stomach/chest
> burning, and a lot of stress. I am going to two urologists in the
same
> group (one is a physician assistant (PA), and the other one a
surgeon). I
> basically have chronic non-bacterial prostatitis (along with BPH),
and I
> requested massages by the PA as well as antibiotics even though I may
not
> have bacteria. I took levaquin for 30 days in January and had about
4
> massages (boggy prostate with white cells but no evidence of
bacteria).
> Seemed to get better but came right back. I also had some bactrim
before
> the levaquin which I am currently taking now, as a prophylactic at
best. I
> try to ejaculate at least once a week (its difficult when your not in
the
> mood), but I am not sure if it is helping or hurting. I know it
cleans the
> prostate out and is generally considered essential.
>
> This latest attack is quite bothersome. I have bad nocturia (like
every 45
> minutes) and difficulty voiding, and constant burning and gnawing in
my
> penis and pelvic floor, as well as a lot of pain in my rectum which
feels
> like pressure and the feeling I want to have a bowel movement. My
retention
> was only 39 ml so I am able to dribble my bladder almost empty. The
PA
> tried me on detrol la (for overactive bladder), which just made me
worse and
> was contraindicated (in my opinion), since it is an anti-cholinergic
that
> just made it more difficult for me to urinate, and I stopped it
immediately.
> I can not take alpha blockers (which are smooth muscle relaxers)
since they
> plug my nose up completely and immediately (including hytrin,
cardura, and
> even flomax which is uroselective and targets the alpha 1a receptors
which
> are plentiful in the prostate tissue, and apparently present in the
blood
> vessel walls in way of my nose). I was disappointed I could not take
the
> flomax.
>
> I requested a cystoscopy by one of the surgeons and a uroflow, since
I know
> I am not voiding properly. The cystoscopy showed some scar tissue
from my
> previous bladder neck surgery in 1995 (a different uro in another
location -
> for retention problems), and the doctor said he would cut me again
> (transurethral incision) and clean up the "band" as he called it, and
that
> should free up the bladder neck/urethra and help me pee better. My
uroflow
> was below normal (15ml/sec peak and 10 ml/sec average).
>
> I agreed to the surgery to improve the blockage and will be having it
on
> 4/8/05. I realize the scar tissue will grow back again but I have to
get
> relief.
>
> However, I do not believe the surgery will have any positive effect
on my
> prostatitis pain, and I will still have some blockage caused by BPH,
as well
> as from prostatitis. I have asked the doctors what the percentages
of BPH
> versus prostatitis is causing my prostrate to be enlarged and they
can't
> answer nebulous questions like that. I also asked the PA (who has
done all
> the digital exams/messages) how enlarged was my prostate based on a
57 year
> old man and I got a vague answer (kind of like its typical), and he
said he
> can only feel the back side.
>
> Sorry this is so long. I wanted to give you the background. Believe
me I
> am suffering (its even tougher when you live by yourself). In
closing I
> would like to ask the following.
>
> - Is the rectal pain appropriate for my prostatitis. This is the
worst it
> has ever been. All I do is go to doctors and I hope I don't have to
go to a
> general surgeon for a rectal examination under anesthesia, or have a
> colonoscopy (my bowels are okay). I am having an EGD two days from
now.
>
> - How many of you have experienced the rectal pain I have described.
I hate
> to keep taking antibiotics if they aren't doing anything but I will
> definitely continue them until after my bladder neck surgery.
>
> - Also, I don't understand why I have the constant feeling of an urge
to go
> (esp. at night), since I am not retaining, and there isn't that much
urine
> in my bladder. Could it be from the irritation caused by the
prostatitis
> (i.e. can prostatitis inflammation "itself" make you feel like you
have to
> pee even though there is very little urine in your bladder - I am not
> talking about the swollen prostate pinching the urethra and causing
> retention).
>
> - Do you think the scar tissue blockage in way of my bladder
neck/urethra
> could be causing some of this pain I am having. I doubt it, but my
> straining when I pee could be related somehow. There are all kinds
of
> nerves running in that area, so do you think there could be a
connection.
>
> - Will an ultrasound reveal an accurate size of the prostate.
>
> - Can anyone tell me what happened to ANF (he used to write me in
1997).
> What a dedicated doctor he was volunteering his time to the
newsgroup, as
> well as all the other doctors who participated. How many doctors are
in the
> group today.
>
> Thanks for your time in reading this. Hope to hear from some of you
soon.
>
> Pete
.
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