Re: Any Dr. Federico Guercini patients?

pete, i am going to tell you a secret because i read your post and felt
sorry for you, take your ass to the nearest drug store and get you some
maalox plus.
make sure it has at least 40 mg of simenthicone in it.take 2 table
spoons as soon as you get it. then take 1 table spoon when you finish
each meal.
i wil guarantee you will feel much better tomorrow.
Pete wrote:
> Robert...I don't know where you live, and if you are looking to see
Dr.
> Guercini in Rome as a second opinion, or what. I live in Maryland,
USA,
> (and do not have the exact same condition you do), but I just wanted
to let
> you know you are not alone in your suffering, and I totally
sympathize with
> you, and my heart goes out to you. I too need some hope and it is
hard for
> me to go on - especially living by myself - I don't have any ones
shoulder
> to cry on - LOL. I have been suffering for months with prostatitis
which
> has been exacerbated and made much worse by the TURP I had five weeks
ago,
> and instead of getting better I get worse (i.e. it is not healing
properly
> or improving).
>
> Have been back to uro who did TURP three times and he says wait.
Went to
> another city for second opinion and he says wait (didn't even examine
me).
> Been to my doctor (mostly for pain control discussion -I can't take
opiates
> or amitriptyline since they constipate me). He would not give me a
blast
> dose of prednisone (nasty anti-inflammatory drug which lowers your
immune
> system and has hordes of bad side effects) since it was not in his
training
> to prescribe it for prostate related problems, and said he doesn't do

> prostates (isn't it wonderful). I have taken prednisone several
times in my
> life for sarcoidosis, and post operative inflammation stuff, and
respiratory
> related problems, and really shouldn't take it now since I have a
serious T4
> cell deficiency ( non- HIV, cause unknown). But I am desperate and
it may
> help the massive inflammation that I know exists in my prostate and
> urethra/bladder and whole pelvic floor, including the rectum. I have
been
> on four different antis almost non stop for months (mostly on my own
doing
> as a prophylactic). I do not believe it is infectious since previous
urine
> samples and prostate secretions did not indicate so. But the son of
a bitch
> is eating me alive, and the TURP has ruined me. The pain and
discomfort is
> indescribable, 24 hours non-stop.
>
> Have been to my general surgeon, who gave me a digital, but wouldn't
agree
> to an exam under anesthesia [i.e., the specula (shoehorn) exam - I
can't
> handle the prep for a colonoscopy right now - which my gastro wants
to do].
> I asked the surgeon how does he know I don't have proctitis or a
massive
> yeast infection and he said if I had proctitis I should be bleeding
and he
> has never seen yeast in the rectum (I have a lot of itching in the
rectum
> also). He suggested trying neurontin (an anti seizure GABA type drug
that
> is also used for various pain syndromes (but mainly shingles). I am
giving
> it a try but it could take a week or more to help (if it helps -
which I
> doubt it will). NSAIDS do not help and I can't take a lot of them
because I
> also have stomach problems and take PPI's. There is a drug called
cytotec
> to take with NSAIDS but I am taking enough pills already and do not
want to
> take it since the NSAIDS don't help anyway even at higher doses.
>
> I have a lot of pain and burning from my urethra to my bladder and in
my
> prostate, and pain and pressure in my rectum, and it feels like I
have pee
> (real bad) all the time (even right after I go - what a horrible
feeling),
> non stop 24 hours a day (can't sleep or eat or function). If I
wasn't
> retired I would not be able to go to work. I retired early from the
DOD
> when president Clinton downsized the department of defense if you may

> recall. Sorry I'm rattling on, just need to talk to someone.
>
> This group used to be pretty good back in 1997 when there were
several
> doctors involved and a lot of suffering prostatitis persons just like
you
> and me. The participants seem to have dropped drastically (based on
the
> numbers and frequency of the posts), and we appear to have lost the
doctors.
> There is also the prostate.bph group which seems to have more
participants.
> IMO prostatitis and bph go hand in hand (but you can certainly have
one
> without the other). But when you have both, forget asking the uro
which one
> he thinks is causing the bigger problem.
>
> I'm sorry I got so carried away telling you about my problems Robert
(just
> wanted to let you know you are not alone and maybe try to offer some
moral
> support). I will ask a couple questions about your condition now
(please
> write me back -and don't forget to tell me where you live). How did
they
> find out about the blockage of the one ejaculatory duct and what type
of
> surgery did they do to try to correct it. I was told mild
calcification is
> okay and normal as you get older, but you said you have extensive.
How
> would they correct that. I am told that there is not a urologist on
the
> planet that will remove a prostate unless it is cancerous, so I am
curious
> how they would correct extensive calcification. You also mention you
have
> an infection - how did they identify it and what kind of antis are
you
> taking.
>
> I have been in severe pain three times in my life, which I consider
> equivalent to child birth (which I can only assume) and kidney stones
(which
> I have witnessed). Anything much worse than that, I believe you
would pass
> out. There are all kinds of pain (e.g., sharp and dull back pain,
tooth
> ache, debilitating nausea, severe malaise, various cancer pain,
etc.). But
> I believe the non stop pain and discomfort I have right now and have
had for
> five weeks since my TURP, and the similar pain before the TURP, is
enough to
> make a grown man cry. I do not cry, but it is difficult to deal with
day
> after day, with basically no help from the medical world. I believe
this is
> just as bad or worse than having cancer, since cancer patients
usually don't
> suffer real bad till near the end (of course it depends on the type
of
> cancer you have - I am somewhat medically literate). But I think you
get my
> point. I would like to see one of my doctors deal with this, and see
what
> they would do (that is not to say I am wishing it on anyone).
>
> Robert, if you were able to get through this long post, please write
me back
> (just take the "nospam." out of my address if you want to write me
> directly). I will also send this directly to your e-mail address. I
am 57
> years old, have been married twice, and am a retired naval architect
who
> used to design ships for the navy, and I live by myself with my two
cats. I
> wish you the very best, and hang in there, just as I am trying to do.
>
> Pete
>
> "ProstatitisEDO" <robertgyngell@xxxxxxxxxxxx> wrote in message
> news:1116042223.263500.204350@xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
> > Dear Mates,
> > Are there any actual patients here who have seen Federico Guercini
M.D.
> > in Rome? I have prostatitis, extensive calification of the
prostate,
> > and a blockage of one ejaculatory duct caused by all the swelling,
> > which surgery has not fixed.
> > I really need some hope that my infection can be cured and that
> > something can cure the prostatitis and ejaculatory duct obstruction
and
> > stop all the pain. You can email me or post here. Please no
negative
> > posts or spam.
> > fair dinkum,
> > RobertGyngell@xxxxxxxxxxxx
> >

.

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