Re: very sad... good vibes needed

Oh, this just makes you sick. I can see a new mother not knowing what is expected, but with these clinical findings and a mother saying SOMETHING IS WRONG.... Horrible. Babies do not have blue lips for now reason.


Kathycarp wrote:
No good news about Loran. The surgery didn't happen this morning because her CAT scan showed more problems. She is having a brain and liver MRI today, and possible surgery tomorrow when they can gather the necessary surgical team.

Her oxygen sats are in the 60s max, sometimes lower. They transfused her and still not better. Her lungs just can't oxygenate enough blood. It is assumed that her oxygen sats have been like this for months, and there might be brain damage.

So sad that her mother has taken her to the pediatrician numerous times in the last six months, telling him there was something wrong. All they ever did was pat her on the head and say everything was fine. There were obvious signs to even those of us who saw her infrequently that there was something wrong (blue lips, blue fingers and toes, lack of muscle tone, lack of growth). I mean, this baby that was born at the 90th percentile in size, went to the 20th percentile in 6 months and her pediatrician didn't even question that???? He just kept saying she was "small boned". I'm just so sad for them I can hardly stand it.

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