Re: thyroid problems
From: J (nocontact_at_nospam.inv)
Date: 12/29/04
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Date: Wed, 29 Dec 2004 16:29:34 -0500
v wrote:
> After starting 50mcg's Synthroid
>
> felt better within weeks
> slept better, felt awake after sleeping for first time
> didn't get excessively tired later in the day
> much clearer thinking, not in a fog...this was shocking to me and so
> noticeably different
> skin cleared up, skin got thinner
> lost weight in difficult areas such as abdomen (keep in mind, I went
> from 13 to 10% bodyfat in this time, so I wasn't overweight to begin with)
> allergy symptoms were almost non-existent
> no muscle cramps, quick recovery from exercise
> cold sensitivity completely disappeared
> aerobic capacity seemed to improve significantly (noticed this running)
> no sore throats
>
> About the time my dose was dropped to 25mcg's
>
> Noticed frequent headaches. I've never had headaches.
> Very jittery, fidgety, couldn't sit still
> heart pounding
> complete intolerance to heat, difficulty maintaining previous levels of
> exercise
> tremendous appetite
> weight loss, from 180-158.lbs
> very significant loss in strength and muscle mass
>
> After going completely off synthroid.
>
> I felt the return of the "brain fog".
> Feel much more fatigued, same tired feeling all the time, and getting
> much worse later in the day
> allergy symptoms have returned
> still can't seem to gain back weight that I lost
> seem to be less tolerant of hard exercise
I have hashimoto's.
Before I was diagnosed I must have been "hypo" because I gained 80 pounds.
Then all of a sudden weight kept dropping and I was very ill, including
allergies and everything you desribe immediately above.. My thyroid enlarged.
I'd been coughing and the doctor kept telling me it was allergies instead of
noticing that my thyroid was enlarged. So he kept telling me take cough or
allergy medicines. Many of them have warnings about thryoid on them. (are you
taking some?) I've always had to be careful which meds I am taking, they can
cause jitters.
I finally went to a different doctor who could see and feel the problem, got
me to an endo and got me properly diagnosed/treated.
It took about a year to stabilize and feel better and as I recall, I was
started at 1.25 medication.
My goitre disappeared after about 18 months. I'm not sure why I was coughing
except at the same time, they found that I reacted to a TB test.
Looks to me that they started you too strong, too fast, and they're trying to
mitigate the potential damage with the methimazole (which is usually used for
hyperthroidism.
http://www.nlm.nih.gov/medlineplus/druginfo/medmaster/a682464.html
My bloodwork was monitored (the first year) every three months and
titrations/dose changes very slowly.
25 years later, I get monitored every 6 months or once a year. After 3 years,
I'm no longer seeing an endo. Primary care physicians should be able to pick
up from there, unless there's drastic changes that they don't what to do
about. I've seen an endo twice since for questions. Once he made a slight
adjustment to the med.
Take it easy (for now) with the "hard exercise"..getting too hyperthyroid is
dangerous for your heart. They increased my Dad's to address fatigue and he
had his first and only heart attack.
Hashi's is an autoimmune form of thyroid. (does autoimmune run in your
family?) Lupus "runs" in our family. There's other types of autoimune
diseases too.
My doctor's would be alarmed if my TSH ever got close to the low numbers that
you've described here.
http://www.nlm.nih.gov/medlineplus/ency/article/003684.htm (our "normal"
ranges here are 0.4 - 5.0)
Medline's changed theirs again and it's a bit lower range (see the web page).
You cannot get there that fast. It has to be slowly..
And it should always be done by the same lab..
Did anyone palpate your thyroid to see if there's a nodule? I had one and a
needle biopsy. It was benign and I've been fine ever since, unless I have to
battle with doctors to not let my TSH go too high.
I use this for my information http://www.thyroid.ca/English/Guides.html
Hashi's is under "Thyroiditis".
Get copies of your various labwork and hopefully you'll find someone competent
to sort this mess out.
I'm not a doctor, just a patient.
I wish you well.
J
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